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i have had my j-pouch for 18 years.  For the first few years I had a problem with slight leakage while out on walks. The acid/enzymes would get to the sensitive cheek skin and begin burning severely, like lemon juice on an open cut. Very painful.  I was fortunate to switch to another colorectal doctor who gave me a wonderful solution that I want to share with this forum.  I now carry with me a half dozen 100% cotton balls (jumbo size) at all times.  After every BM I take one cotton ball, gently stretch it to 2" long and place it between the cheeks to absorb the small leakage before it can migrate to the sensitive cheek skin.  Before the next BM, I just remove the ball and drop it into the toilet.  

I just shared this technique with my sister who got her 

pouch years before me.  She had recently shared having the burning butt issue during walks. She has now had great success while using little cotton makeup squares.  She also shared that women's clothes don't always have pockets for cotton ball storage.  Her solution is to store her spare cotton squares in her bra!

i hope this helps folks out there to get around in comfort.

 

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Hi Double M...I love the idea of hiding cotton balls in a bra!!! For me since I've lost a ton of weight because of my past 3 years of problems...this maybe flattering!  Anyway, thank you for the tip.  I am suffering badly at times with the same problem and I will give this a whirl.  That's what I like about the forum...you never know what we will share to help/guide all of us who seem to have so much in common...

Patti

FL

I had not heard of ilex Protectant Paste, but after checking out their website, it sounds like a great product.  It is actually marketed for ostomy sites and a J-pouch is kind of like a bag-less ostomy.  Same aggressive liquids involved.  I will be getting some to have on hand when things get a bit raw.  iLex is petroleum jelly based so it reminded me of when I was using Bag Balm not long after I got my J-pouch.  Bag Balm, unfortunately is almost pure petroleum jelly whereas iLex has quite a few other active ingredients.  I don't know if it is available at the large drug store chains, but I found it on Amazon.com.

Thank you all for your ideas to limit the skin burning.  Keep them coming!  It will give folks a variety of options.

-Martin

DM

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