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Hello! I'm new to this forum, but hoping my question will lead to answers that will help more than just me (I went searching online and couldn't find anything relevant).

 

Background: I was diagnosed with UC in 1999. I had a successful J-pouch surgery in 2009; other than a few minor bouts of pouchitis, things have worked pretty well since then and I'm glad I had the surgery. I'm now in my late 20s, quite healthy and active.

 

Last year, during a period of high stress, I discovered that the bloating/stomach ache I was having for a few weeks was due to a couple of 'quite chunky' gallstones (ultrasonographer's words). After the stress died down the biliary colic symptoms went away--they'd only been classed as mild-to-moderate--so the gastroenterologist was happy to adopt a 'watchful waiting' approach instead of jumping into surgery.

 

Since then, I've had a few very mild events of biliary colic--which is to say a feeling of pressure/bloating under my right ribcage and that odd sort of gas pain in my right shoulder and back behind my right ribcage. No nausea, no bad pain. Really just a bit uncomfortable and annoying, but it doesn't stop my getting on with work and life. It eventually goes away on its own.

 

Because it appears occasionally, even in a mild way, I suspect this means I'll have to have my gallbladder removed eventually. My biggest concern is how my digestive system will react. Although I'm very grateful for my J-pouch, it does make using the toilet a bit of an event: emptying it is loud and smelly, which always makes me self-conscious, and requires wipes afterwards to clean up. When I read the horror stories online about life after gallbladder surgery for people with normal intestines--the diarrhea, the floating poo, the burning skin, the intense bloating after meals--I get quite scared about how my own guts will react. I eat quite a healthy vegetarian diet, so there's not much left I could do in terms of nutrition to counteract any changes.

 

For anyone who has had their gallbladder removed after getting a J-pouch:

What has been the difference in digestion or output?

Have you had to alter your diet?

Do you find your output floats/doesn't flush? (This sounds dreadful.)

Are you more bloated after meals?

Do you have any urgency?

Anything else?

 

I would be so grateful for stories from fellow J-pouch folks! The Internet only seems to have stories from people with regular digestive systems and, of course, only those with the worst experiences post online. Meanwhile, my surgeon--whilst technically quite good--doesn't have enough of a bedside manner to understand these concerns and dismisses my worries as frivolous. (Typical surgeon: understands black-and-white, but no nuance!)

Replies sorted oldest to newest

Hi and welcome!

I had my gallbladder removed way before my j pouch surgery so I cannot compare without it as to with it. But it certainly doesn't seem to effect me negatively in any way. My j pouch functions well...no real issues to speak of and I eat pretty much everything. 

 

PS- I should also mention that I had it removed before my UC dx. After it was out I never noticed anything different with my digestion.  My UC dx came about 5 yrs after my gall bladder went bad. 

mgmt10
Last edited by mgmt10

Thank you both for the replies! Hope to see a few more--the more positive stories, the better I'll feel. (The Internet is full to the brim of people with major regret about gallbladder removal and it scared me far, far more than the idea of getting a J-pouch.)

 

mgmt10, kind of the reverse to my situation, but shared experience appreciated all the same. Do you happen to recall what the recovery period was like with your gallbladder removal? Any digestive distress, lose bowels, skin burning, etc?

 

roxy75, that's very encouraging, thank you! Did you find there was a digestive adjustment period after the gallbladder removal? How long until you were feeling back to normal? Any skin burning or urgency/accidents?

SP

I had had my k pouch (same pouch differnt exit) for 33yrs when I finally had my galbladder out...years of intense back stabbing pain, low-grade aching and general bloat and discomfort after eating or high fat meals (think pizza and nachos).

My surgeon rang the alarm bell when the darn thing just kept getting bigger and bigger because the golfball sized stone kept preventing the bile from escaping...ended up with a 1 litre (1 kg) galbladder that was full to  bursting and nearly exploded inside of me (not a good thing at all).

Post op? 3 days in hospital for security sake due to its size...Laporoscopic surgery meant that I had no big scars to make me suffer but 3 tiny keyholes that didn't hurt at all...bloating from the injected gas and...that was it.

A few days back home I had an incident with my right lung due to the size of the galbladder and the pressure that it had put on the lung but that is me and not a normal post op complication.

3yrs since...lets see...no glabladder, no back stabbing pain...no pain under my ribs, no bloating...Lots of no's...no yes's...

Did my output change? Not at all except (and this may be my imagination) but less gas.

I just regret not having done it 10yrs sooner.

Hope that this helps

Sharon

skn69

The recovery from my gall bladder surgery was pretty easy. Just some pain from the little incisions (I had it laparoscopic) and also some nausea from the anesthesia. I always have a bad reaction to that stuff upon wakening. Ugh. But I was back a work in a week. It was same day surgery.

My hubby just had his out six months ago and it hasn't effected his digestion at all. In fact, I have a lot of family members with no gall bladder and I never heard anyone mention any ill effects from it's removal. I'm actually surprised to hear you said you have read a lot of negativity about it. I felt SO much better after my diseased gall bladder was out.

mgmt10
Last edited by mgmt10

skn69, whoa that's quite a urgent gallbladder situation! I'm glad to hear it all ended well. And your report now is really good news (less gas would be amazing, whether or not it's actually true). Thank you so much for sharing that. No bloating, no pressure under ribcage...hmmm...

 

mgmt10, that's really nice to hear. I don't mind a little post-op incision pain (sounds like a breeze compared to the huge incision for my J-pouch). I go to the gym regularly and do some lifting at work (stacks of books, metal security grates, etc.), so I'm a bit concerned about downtime for those sorts of things. A week or even two would be tolerable. Most of the negative reports I read online are about people experiencing urgency/diarrhea and no longer being able to tolerate fatty foods. (I eat quite a healthy diet, but I do like the occasional baked good, ice cream, pizza, etc--I'd be sad to have to eat just salad all the time, much as I love it.) Granted, all of the other reports I've read online were from people were otherwise normal digestive systems.

 

So far that's three positive reports! I already feel better. Keep 'em coming, lovely forum folks!

SP
Last edited by Scotland Pouch

Great topic!  I just had a J-pouch redo at Cleveland Clinic four months ago, and about ten days later a very bad GB (gall bladder) attack -- close my eyes and there was a horse standing exactly where you describe it, just under my right rib cage, a bit toward the sternum!  I think I am pretty pain tolerant, but it was an ambulance call to take me a short 2 miles to the hospital at 4:00 AM.  WOWZER!

 

So after the redo and this attack, we decided to do a two-for-one -- takedown and GB removal two and a half weeks ago. My question beforehand was exactly what you are asking now, how will a pouch be worse off without a GB.  This is my THIRD takedown, so I have a bit of a comparison to the first two.

 

Now, if it wasn't for the very small scars (great laparascopic surgeon at CC) I truly would have NO IDEA I actually had the thing out.  No pain, whatsoever, and my recovery from takedown has gone swimmingly.  A short time out, and I'm close to "on with my life" -- I am ecstatic!

 

Now, I do not notice any difference in output whatsoever.  I've eaten pizza, steak dinner last night, bacon on at least three occasions.  I do seem to have a bit of a "full" feeling after eating that I'm not sure I had before, not sure if it's related, but I will try to eat slower and use this feeling to keep me from eating everything in sight. 

 

Having said that, I have a friend who said removing the GB was a big deal to her digestive system and she has changed her diet complete, has to definitely stay away from fatty foods.

 

I think while we bring inflammational issues to the table by definition, I think most of us, with what we've been through, would hardly notice anything terribly bad from having our GB removed.  Best wishes!

aka KNKLHEAD

Ack, sorry for not replying sooner! I've been very grateful for the feedback. Thank you, katey and KNKLHEAD, for the reassuring posts. They really did make me feel better.

 

I went ahead and scheduled another consultation with the gallbladder surgeon for early next month (last I saw him was January when he was happy to agree to a wait-and-see approach). I'm still a little hesitant because I've never experienced an attack like others have detailed, but then perhaps it's best not to wait. After all, we know the stones are there and that they aren't going to disappear on their own. If I do decide to schedule surgery I hope to post a happy update for others to see in the future. Better than all the horror stories from non-J-pouchers!

SP

One more bump to this thread as I'm considering removal again after a strange event: I had an orgasm last night during sex (hurrah!) and within 15 minutes had terrible pain all through my torso, shoulders to hips. Never experienced that before! It was like an electrical storm for all my nerve endings plus bloating--really awful, had to lay perfectly still for an hour and took painkillers. It's now roughly 12 hours later and I have a mild stomach ache and residual soreness in my right shoulder, mid-back and under ribcage, all making me think something about this orgasm--nothing special--set off some very unpleasant spasms that upset my gallbladder.

 

Still really worried that getting the thing removed will result in floating poo and chronic diarrhoea.  Thoughts? Anyone had biliary colic set off by an orgasm? (Is that the most depressing thing or what?) I did have what felt like a low-grade case of food poisoning earlier this week, so perhaps they are related, but this all seems very, very strange.

SP

Yikes!  I have never had the issue you describe, not sure, but the gallbladder can become pretty messed up.

 

Nonetheless, I had the takedown and GB removal at the same time three months ago. No pain and not a bit of noticeable difference in output for me.  

 

I say remove EVERYTHING that is optional .. colons, gallbladders ... the whole works!  (just kidding, but this is what I joke about with my family)

aka KNKLHEAD

Scotland,

I would suggest (I removed the word 'strongly") that you contact your doctor or go to the ER and get an EKG done.

What you described could be many things including galbladder or heart.

Do not neglect the obvious thing...sex (no matter how tame) can still kick up the blood pressure and the orgasm can push you over the edge...

Get it checked out

Sharon

skn69

aka KNKLHEAD, yes, let's just get rid of all the ticking time bomb organs. They are such pests. Anyway, really glad you didn't notice a change in output. It's such a fear of mine (followed by wondering how long it'll take to get back to regular exercise post-op)! I don't need my toilet life to get any more complicated or annoying.

 

skn69, it definitely wasn't a cardiac thing. I'm young (29) with a very healthy heart (excellent diet, lots of aerobic exercise) and no history of any problems there, thank God. The gallbladder is the most likely culprit. I made it to the gym today and was fine through all manner of exercise--really just felt like I'd done a lot of abdominal exercises yesterday already (which I hadn't). But I've decided that if this doesn't all fade away by the beginning of next week (or another orgasm sets it off again--research!), then my gallbladder surgeon is going to get The Call.

 

Hopefully accompanied by a million more messages here from J-pouchers who were happy to have their gallbladders removed.

SP

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