I am sorry this happened to you. This may seem harsh, but it is OK to not want to take medication. What is not OK is to deny the fact you have a disease that needs to be treated. You have to accept it and move on.

 

If you were diagnosed with diabetes, you would do what was necessary to control it, including medications, correct? Why should IBD be different?

 

It is normal to be disappointed and mourn the loss of the health you were counting on. Have a pity party, then start over to work for a better future. I never expected to need to be on biologics for arthritis. I never expected to get diabetes. I never expected to develop a cardiac arrhythmia or adrenal tumor. But, these things did happen. I am OK though, because of treatment. Not what I wanted, but I am happy to have it.

 

You will be OK.

 

Jan

Sorry to hear you're suffering. I too have been having cronic problems this past year after 11 yrs. of J pouch. Will be looking at permanent Illeo in the new year. In the meantime I'm on Entocort as antibiotics did not help. So far I'm feeling better and not much side effects like prednisone. Probably not a permanent fix but helping for now. Hope you're feeling better soon whatever the treatment will be better then feeling sick at the time.

Sorry for your problems. I made it 21 years before I had some issues. I never expected any of the things that cropped up for me to come up. It isn't the path I *like* but I have to deal with it. Some days I do allow myself a breakdown, but mostly I plug along. I'm an ICU nurse, and I see people who are suffering WAY worse than myself every work day, so it brings me a perspective I would never otherwise have. Believe me, things could ALWAYS be worse...

But as Dory says in "Finding Nemo" - Just Keep Swimming. And that's what I do.