IBD can certainly express itself (or associated conditions) outside of the intestines, and those "extraintestinal manifestations" need to be kept in mind. Nevertheless, I'd caution folks not to assume that every problem that afflicts them is related to their IBD or their J-pouch. Each of us ages, and each of us faces the same risks as folks without IBD/J-pouches of developing additional conditions. It's most useful to keep an open mind in both directions, considering possible connections, while staying open to the possibility that it's a new, unrelated problem.

The thing that caught my attention... And I do have an open mind... Is that they looked very similar to what the photos looked like of my potos in my colon after a scope.  I have even looked back at the color photos I received after a scope.  Of course they are not bleeding but most of the times I didn't have blood in my stool when ulcers were present in my colon.  It may be just a coincidence. And I  probably is.  My mind wonders and thinks weird stuff when I assume things such as this.

My son sure did.  He developed Primary SclorIing Colohitist, I'm not spelling it right, put it is another autoimmune disease primarily caused by having IBD, specifically UC.  It has no cure, no drugs, no nothing.  And if you get a liver transplant it comes back.  

 

Have you been on antibiotics? They can cause skin issues by leaving the skin flora weakened and allowing bad fungi and bacteria to overpopulate.

No.  No antibiotics.  Only took them once since surgery and that was a year or so ago.  And never even finished them.  I thought I had an infection but it was something else.  Only take one drug and that's an antispasmodic.  I don't take anything else.

Yes. I get patchy eczema that I have dealt with long before my colectomy. Waxes and wanes. Used to be mostly on my hands, but now on my arms and legs. Lately, it has been worse. I am suspecting my sulfasalazine is a factor. Not so much of an allergy, but the known sun sensitivity associated with it. I stopped taking it and my rashes improved after a couple of weeks. I resumed it at a lower dose, and the rashes are cropping up again. I was mostly taking it for my IBD related arthritis, but I don't notice much difference when off it, so I will now just use Canasa suppositories instead of The sulfasalazine.

 

I have also needed more frequent dosing of antibiotics for pouchitis the past year, and that probably also adds to the sun sensitivity. Since my husband and I retired last year, we are spending more time outdoors walking and gardening. Sunscreen only does so much. I am not burning.

 

This does not help you, since you aren't taking this drug. But, perhaps you are experiencing sun sensitivity type eczema. Have you been outdoors more lately?

 

Jan

My daughter has ezcema really bad on her hands and some on her arms.  If she scratches it gets so uncontrolled that she will actually bleed.  She is learning to try and not to scratch and is on very powerful cream.  Her dermatologist did tell her that it can definetly be stress induced too.  Don't know if this will help, but perhaps going to a dermatologist may be a place to start.

Fight like a girl, I am the mom, not the patient .  That said, I have had the itchy hands for over a month now.  My doctor said it was stress induced exema as well.  Gave me a cream which helps a little.  But the big help is spraying Benedril on my hands.  I've also broken out in hives three times in the last month.  I'm so tired of scratching!  But the hand thing is really annoying.

 

Yes... Eventually I will see a dermatologist.
I hate Dr appointments by now.
Any Dr!  Lol.
I had eczema years ago on my head!  No where else.  I used to pick at it to get it off.  At one time it just went away.
And yes... If I scratch at the spots on my arm it will bruise.... Yep... I am old and have easily bruised  skin but just on my arms.... Anyways.... It will bleed too.  But it feels so good to scratch and I know I cannot do that.

Oh... I don't know how to edit my post.  (have to go to standard view... Thanks Jan)
But as for stress.  It was hell when I had a colon. 
My insides would get all screwed up and it was from unfelt stress.  Stress that wasn't really... Well you know. 
Just stupid things like work and such.
It still affect my insides.  Even my Pouch.  I can tell. 
Hard to explain but you all know what I mean if stress affects you.

If you want to edit your own posts, you just click on the paper/pencil icon in the lower right corner. It will reopen the post for editing. 

 

Jan

By the way, those icons do not show up in the mobile version on the iPhone. You have to go to settings and switch to the standard view to see them. On the iPad and desktop version, the icons are visible.

 

Jan

I've had similar skin issues only on rare occasion. My remedy was the same " itch cream."  I've been taking natural oils for about four months and I haven't felt this good for a long time. Skin clear, pouchitis gone. dōTerra- micro plex MVp, alpha CRS+, xEOmega, digestZen terrazyme, digestZen oil

I, too, get hit with generally mild eczema. This summer, it's around my hairline by and around my ears. The heat and sweating make it worse. Whether it's IBD related or not is unknown to me; other people in my family without IBD have suffered with eczema, my paternal grandmother being one of them.

I also have developed extreme dry eye. That they told me could be linked to my IBD history. Can only wear glasses. The Schwirmer's test should normally show > 10mm of moisture on the paper (they numb your eyes and stick a paper in your bottom lid to see how many tears you make); I made 2mm, that's it.

My daughter has IBD associated arthritis. However, her father and his sisters all have arthritis in varying types (ankylosing spondylitis, sero-negative spondylitis, and he has psoriatic arthritis), so he brings autoimmune issues to the table, too.

Yes, I've got severe alergies that range from hives to anaphalaxia that requires emeregency hospitalization...I now take a benadril every morning for life (to prevent it from starting up in the first place)...

I have arthritis as well...not sure if it is related or not or just a side effect of all of the abdominal surgery and related inflamation.

We've got fibromyalgia, hypo-thyroidism and some other related diseases in our family so I am not sure if the auto-immune is heriditary on not but I suspsect so.

No cure for autoimmune yet as far as I know.

Sharon

I  have gotten iritis a few times ... it is floaters and flashes in the eye(s).  I was told it was from the autoimmune of UC by the eye dr.

Yes, I have had many extra intestinal manifestations. Not a rash like you are describing, but I have enteropathic arthritis in my hands, iritis 3 times and, the worst of all, I had a pyoderma gangrenosum deep ulcer on my calf. I was told these were all autoimmune conditions related to IBD, irrespective of having my bowel removed.