I've had a proctocolectomy ten years ago, then eight years ago got an ostomy bag due to chronic pouchitis and this past Sept. had the cuff removed then had the reversal in February. Since day one after the last surgery my pouch has been out of control and I've been really sick, pain is 10 out of 10! Little bowel control, sharp pain, etc. I'm sad to say that I'm going for surgery in a June for a permanent colostomy bag. After all this and I need an ostomy bag to rid this horrific pain. I've tried every kind of medicine to no avail. Please give me your thoughts and any positive words as I am feeling very scared and nervous, thanks
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While an ileostomy may have been what you wanted to avoid, my guess is that with it, you are going to feel soooo much better, it won't matter anymore. Just get on the path of healing; after all, your quality of life right now likely isn't awesome, but it may be in time.
Good luck.
Good luck.
Thank you, you made me feel better��