posted a few weeks ago am waiting for a date to have pouch removed have been on pred for the last three years have had enough. Am down to 17.5 mg and can still eat but have a great deal of either joint or muscle pain seems to move around right lower back hip right heel or back of thigh. Seen family Dr. tried physio and naproxen which has helped a bit having hard time walking any ideas out there I think it may be due to the inflammation in the pouch feel somewhat better after three iron infusions because of bleeding could it be caused by that? Shawne
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Hi Shawne,
I was just put on 2gms of Naproxen/day for the inflamation + with 2 grms of tramadol for the pain (right sacro-iliac, knee, ankle, cervicals and subscapular pain that had me throwing up and nearly ready to off myself)...I decided to take off 10 days and go away to the seaside.
7, 1 hour deep tissue massages that had me screaming my lungs out, 2 adjustments by an Ethiopath (sort of a cross between a chiro and an osteopath just a different phylosophy) and 2 hours of swimming/floating/stretching/walking daily.....
I can finally stand up and sit down without screaming....it was intensive, hard work, had me in tears most of the time but I am home now and have stopped the tramadol and am down to 1/2grm naproxen/day...not perfect but better.
I think that the only way to go is an intensive attack if possible...I was on lower doses of both meds plus 1-2 massages weekly and it barely touched it, just maintained the level...I am not sure how long the benefit will last but for now I am cheering the improvements.
Hope that you find your way out of the pain
Sharon
Sounds like me! It turned out to be my feet, ankles, threw out the hip, which threw out my lower back. I now am blessed with 5 bulging disks and 2 pinched nerves. Find a good foot doctor and then a sports medicine doctor for your back! And good luck!
Trying to understand these posts. Is there a correlation with j-pouches and inflammation in feet/ankles? Just wondered since I've had huge problems with my feet for a few years, but never thought about this being connected with the pouch issues. I had my colonectomy in 92 after 3 yrs of severe UC, and take down a year later in 93. I have done remarkably well, pouch-wise, but have had other issues with inflammation.
You can get IBD related arthritis years, even decades, after colectomy. Pouch inflammation can make it worse, but if you have spondylitis related to IBD, it can have a course independent from your IBD. For me, it all began with persistent plantar fasciitis and Achilles tendinitis. Later came the sacroiliitis and my diagnosis of enteropathic arthritis.
Jan 