Hi everyone, Long story short... I was on Remicade for 2.5 years and after 2 reactions (1 very serious), my doc took me off of it. Because I had done so well and my labs were perfect for that period of time, we decided to try to keep me off of the biologics. I had a scope on 3/3 that was perfect. At one point, I was experiencing foot and lower back pain,so my GP sent me to a rheumatologist. 6 months ago, he did an extensive list of blood tests, all normal. I went back for my six month check and one of my antibody counts was 1250 ( norm is <99) and the SCL70 was 125 (is was negative 6 months ago). He discussed scleroderma with me and frankly scared the be-Jesus out of me for very good reasons. But, he looked me over and said that I didn't have any physical manifestations for him to be concerned and said that he would see me in a year. He also told me about a conference that he attended where the topic of an large number of false-positve SCL70 tests was a concern to local docs.
Does anyone out there know anything about this? Eventhough he told me to "go home and live my life", after 20 years of one thing after another, I am petrified.
Thanks,
Lisa