I have heard that some have taken a medication for spasms which are often very frequent. I have asked my GI but he is ill informed on JPOUCH. I would appreciate any answers that have worked for others
Replies sorted oldest to newest
If you search prior postings for the word "antispasmodic" (and perhaps "Bentyl" and "Levsin") you'll find numerous discussions of the uses, benefits, and side effects of these medications. For some people they are a godsend, particularly in early days if you have a twitchy pouch. That's a technical term.
i have always had very intense pouch spasms. Painful. They tried me on 3 different antispasmodic meds and all of them blurred my vision so badly i couldnt see, let alone drive to work. My GI has had me on a low dose of oxycodone for the last 6 years that calms the spasms which in turn helps the pain. Then out of the blue he cut me off 3 weeks ago after 6 years. Said i need to see pain management now, which they are a joke. I saw them previously to my GI filling my script and they would not keep me on anything long term. I'm not sure they are familiar with my history and that this issue isnt just temporary. Trying to get my GI to consult with pain management. not crossing my fingers
i have always had very intense pouch spasms. Painful. They tried me on 3 different antispasmodic meds and all of them blurred my vision so badly i couldnt see, let alone drive to work. My GI has had me on a low dose of oxycodone for the last 6 years that calms the spasms which in turn helps the pain. Then out of the blue he cut me off 3 weeks ago after 6 years. Said i need to see pain management now, which they are a joke. I saw them previously to my GI filling my script and they would not keep me on anything long term. I'm not sure they are familiar with my history and that this issue isnt just temporary. Trying to get my GI to consult with pain management. not crossing my fingers
This could be the result of the FDA cracking down on the abuse of opioid pain meds. Maybe since it is a liquid form you could get around the new FDA policies with Tincture of Opium.
Spasms are the worst!!!
Ks1905, it is the FDA regulations. They probably looked over his script writing and perhaps received a warning. I lost a script for something, I forget and the doctor went nuts. But cutting you straight off is dangerous. I'm sure you had some amount of withdrawl.
Opiates really are not very good for spasms, even if they seem to work. The doctors have to jump through hoops to prescribe them, especially if you are taking oxycodone, which has a very high abuse potential. But even with hydrocodone, they are clamping down. I know, because I have been on it for many years at very small doses.
If the anticholinergic antispasmodics like Bentyl and Levsin have too many side effects, how about trying the muscle relaxers, such as Valium. It is not without its own set of problems, but at least you do not run into the DEA issues as much.
Would your primary doctor be willing to order your meds for you? Mine does, even though my rheumatologist evaluates and prescribes them initially.
Jan
I have been taking vsl3ds for a few months and I know it has an initial gas contributor. I have never been able to avoid the gas issue. The problem is not its avoidance but the butt burn that results. Number and quality of BMs is improving but still it and gas issue make butt burn very difficult. Still need and awnser