Hi all -- I've had my pouch 10+ years and all seems good in that regard.
But, I was diagnosed with Wet Age-Related Macular Degeneration (AMD) in my right (non-dominant) eye1.5 years ago.
I've been trying to find the AMD equivalent of the J-Pouch Group — ie. an active forum where all aspects of the disease are discussed. I've found forums but they're not very active and most often linked to a particular product used in treatment.
Apologies if some feel I'm breaking the rules by asking an ophthalmic question here but the J-Pouch Group has been my medical go-to for so long that coming here seems very natural to me.
So, does anyone know where all the AMD people hang out and exchange information? I've been getting injections of Lucentis in my right eye with positive results. I've now been diagnosed with WAMD in my left eye as well and so am now having injections in both eyes.
Jim in Maine