HI everyone!
I am moving to the Grand Blanc, Michigan area. Does anyone know of a good IBD specialist or internest who has experience with jpouch and cuffitis? I really need a good doctor. THe GI doctor I have now, knows nothing about jpouch, especially with no colon and no rectum, perianal crohns and chronic cuffitis. I am losing weight like crazy because I am afraid to eat, everything goes straight through me, I have fissures constantly, and the pain of cuffitis is beyond explainable. All my doctor does is stare at me (seriously, like I am an alien) and says, "well, we know you have IBD, but there is just nothing we can do about it--- You've have several abdominal surgeries with mesh put in which has adhered to most of your organs so surgery to see what is wrong is out of the question....so DO YOU NEED ANY PRESCRIPTION REFILLS" and that is all I get out of him. He hasn't a clue. I desperately need a doctor who knows about this type of sickness, not to mention the chronic fatigue and iron deficience anemia which to me all doctors think is just a JOKE. I am at my wits end, and believe me, I quite often look at all my pills and think "why not" "who would really miss me" and it scares me.... But I am in so much pain all the time and it just seems like NO one cares. Even friends and family don't seem like they care. We don't have an arm missing or a leg missing...they can't see anything wrong with us, SO there must not be anything wrong with us! It's all in our heads!
My doctor who took such good care of me passed from cancer. I've been lost ever since. I've searched for a doctor who cares and knows. ...But I can't find one. Can someone please tell me someone in my area to see. I don't care if I have to drive 50 miles to see them, I will. Please. can someone recommend someone?
