Hello.
I'm hoping someone, anyone can help me. I had a total colectomy in March of 2013, became septic, was in ICU for about a month, went through several months of chemotherapy, and had my ileostomy reversed in February of 2014. Since then, I've been having troubles with my J-pouch. I go to the bathroom several times a day (about 15 times a day or so), and several times overnight (about 3 - 8 times during the night), which obviously hinders my sleep. It's almost as if I'm flaring with UC again.
I do not have pouchitis and my surgeon said she cannot see and leaks in my system. My GI prescribed Mesalamine suppositories, Amitryptaline and Diphen/Atropine, but I'm still not improving. Has anyone out there had any similar issues? It's been a little over three months since my reversal and I just thought I'd be in a much better place by now. The urgency and pain (not to mention skin irritation back there) can be so severe sometimes that I'm afraid to leave my house again (much like when I had my UC flares).
Any tidbits of advice at all would be GREATLY appreciated. I'm beginning to panic over the possibility of having another surgery... I just don't think I can handle that right now.
Please help. Thank you.
I'm hoping someone, anyone can help me. I had a total colectomy in March of 2013, became septic, was in ICU for about a month, went through several months of chemotherapy, and had my ileostomy reversed in February of 2014. Since then, I've been having troubles with my J-pouch. I go to the bathroom several times a day (about 15 times a day or so), and several times overnight (about 3 - 8 times during the night), which obviously hinders my sleep. It's almost as if I'm flaring with UC again.
I do not have pouchitis and my surgeon said she cannot see and leaks in my system. My GI prescribed Mesalamine suppositories, Amitryptaline and Diphen/Atropine, but I'm still not improving. Has anyone out there had any similar issues? It's been a little over three months since my reversal and I just thought I'd be in a much better place by now. The urgency and pain (not to mention skin irritation back there) can be so severe sometimes that I'm afraid to leave my house again (much like when I had my UC flares).
Any tidbits of advice at all would be GREATLY appreciated. I'm beginning to panic over the possibility of having another surgery... I just don't think I can handle that right now.
Please help. Thank you.