I'm due to have surgery, creation of J pouch and loop ileostomy.
Will my current two piece Stoma products be suitable ?
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Probably, but can't say for sure. The new stoma might be a different size that the wafer can't accommodate, or you might need a convex wafer if the stoma is more flush than your end ileo.
Good luck!
Good luck!
In my case I did change.
The first ileo was less liquid and I liked to use mono-appliance (the wafer comes with the bag) as I found it more flexible. The second, the loop one ileo, it was much more liquid and I didn't want to change wafer, so used a nice flexible wafer I like it.
You'll find the best one for you, just continue to seek.
The first ileo was less liquid and I liked to use mono-appliance (the wafer comes with the bag) as I found it more flexible. The second, the loop one ileo, it was much more liquid and I didn't want to change wafer, so used a nice flexible wafer I like it.
You'll find the best one for you, just continue to seek.
I had no problems with my end ileostomy. I had I pouch surgery 4 weeks ago and I am still struggling to find the right bag. My loop is flush to the skin which is how it had to be to keep tension in the j pouch. I am using hard convex at the moment but still trying different bags. Anyway it's only temporary.
Thanks for the replies.
I was just wondering whether to take enough of my current Stoma supplies with me to Hospital.
I'm sure if necessary the Hospital will provide something suitable but I'd rather be prepared and use what I've become accustommed too.
I currently use a mouldable convex flange/collar, which as the name suggest, it moulds to the shape and size of the Stoma, for added protection, I also use Salts Stoma collars which prevent seepage onto the skin and a closed bag to collect output.
Personally, I've no idea what to expect but I envisage the Stoma being of similar size and appearance.
I was just wondering whether to take enough of my current Stoma supplies with me to Hospital.
I'm sure if necessary the Hospital will provide something suitable but I'd rather be prepared and use what I've become accustommed too.
I currently use a mouldable convex flange/collar, which as the name suggest, it moulds to the shape and size of the Stoma, for added protection, I also use Salts Stoma collars which prevent seepage onto the skin and a closed bag to collect output.
Personally, I've no idea what to expect but I envisage the Stoma being of similar size and appearance.
No, it will look different. Because an end ileo has the "natural" hole in the middle, like if you cut a hose in half, whereas a loop ileo has a slit cut in it. They tend to be shorter/smaller and closer to the abdomen. Many people need the convex wafers with them, many do not; every stoma and every person is different. The hospital will provide the basics and will most likely do all of the care/changing while you are in. Make sure you have a follow-up scheduled with the ostomy nurse, as the size and position of loop stomas quite often change over the first few weeks and so the supplies might need to be adjusted.
Gin
Gin
So, does that mean there's no point taking my existing stoma supplies with me ?
You could take one change of supplies with you but I would not take more than that. Your loop will be swollen post-op so likely to be bigger than your old stoma. A convex flange is usually necessary and loop ileostomies are generally very difficult to fit.
Yes, you will still have a stoma but you are playing in a completely different ball park.
Yes, you will still have a stoma but you are playing in a completely different ball park.
My loop was never big, and it was pretty symmetrical as they go and can be. It might work out for you. I never needed a convex flange, mine protruded about as far as a regular stoma.
Thanks for all the very informative replies.
I'll take a small selection and see how it goes.
If current supplies are not really suitable, I suspect the hospital will provide all what's necessary.
Thanks
Take your appliance, I did it, doesn't matter if you'll use it or not. I think it's important to learn and so to be wrong sometimes, I used my old appliance with the loop, and understood the importance to change at the first leakage the first night.
I think that only trying and mistaking I found both of the times the RIGHT appliance that allowed to live fully without a day of absence from work post-op.
And you must do the same. Convex wafers are excellent, don't be afraid if your stoma won't protrude, or your outcome will be too much watery, there will be a solution for that for sure.
I think that only trying and mistaking I found both of the times the RIGHT appliance that allowed to live fully without a day of absence from work post-op.
And you must do the same. Convex wafers are excellent, don't be afraid if your stoma won't protrude, or your outcome will be too much watery, there will be a solution for that for sure.
strange
I took some of my supplies with me for the j pouch surgery and we used it on day 1, it didn't work though and from then on I have been trying different bags that the stoma nurses give me to try.
one thing to note is that this loop ileostomy will probably be flush to the skin as you need to keep tension in the j pouch. just remember its temporary and if you ever have to go back to a loop if your pouch fails, it will not be like this one so don't worry...
I took some of my supplies with me for the j pouch surgery and we used it on day 1, it didn't work though and from then on I have been trying different bags that the stoma nurses give me to try.
one thing to note is that this loop ileostomy will probably be flush to the skin as you need to keep tension in the j pouch. just remember its temporary and if you ever have to go back to a loop if your pouch fails, it will not be like this one so don't worry...
Thanks Shainy.
Must admit, not looked that for ahead in regard to the loop ileostomy, its appearance and closeness to the skin, never even occurred to me, I wasn't worrying, I assumed there'll be very little difference to what I have now.
My current end ileostomy was initially very close and short, reason as to why I use a convex collar, however, it appears to have grown in length, some days it is still very close but most of the time it protrudes.
My concern, is how much will my day to day activites and fitness be affected by the temp loop ileostomy.
first few weeks you won't be feeling well enough to do day to day activities. during that time I'm sure you will find the right bag.
I waited 4 weeks till I did my first run, although I did plenty of walking up till then and even though I get a lot of irritation on the skin around the stoma it doesn't fully leek so I can go out and about without worrying..
I waited 4 weeks till I did my first run, although I did plenty of walking up till then and even though I get a lot of irritation on the skin around the stoma it doesn't fully leek so I can go out and about without worrying..
Thanks again Shainy.
In regard to supplies, Stoma nurse advises that all I need will be provided, especially as I currently use closed pouches, which won't be suitable for the liquidy output of the loop ileostomy.
Also advised that convex collar not ideal immediately after surgery, especially as my surgeon normally uses a rod to separate the intestine.
nurse will take care in the first day. don't worry. you'll be good with the loop ileo.