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Z
Hi everyone,

I've been using my jpouch for almost 1.5 years and I never had any major problems other than fissures. So overall, I must say it's been working well. But now I really need some advice from my fellow jpouchers.

Suddenly I started having little accidents overnight in my sleep. It started about 2 weeks ago. I woke up the first night wondering why I was all "wet". Ever since then it's been happening at least twice a night. I just don't know why I'm having these stool leaks overnight. I'm tired of having to get up and take showers multiple times overnight! I would usually get up 1-2 times a night and use the bathroom but now I'm having accidents in my sleep. Did this happen to anyone? Are we supposed to do kegels daily? I'm worried this is a sign of incontinence and that I need to have another surgery for an ostomy. I'd greatly appreciating hearing if this is something familiar to you.

Thanks,

Zee

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J jeaneMember
This sometimes happens when you are in a very deep sleep especially if you are accustomed to waking at night to empty your pouch. It can also be a sign of pouchitis if you have never experienced it before. You should contact your GI if it continues as a short course of antibiotics should clear it if it is pouchitis. Also see if your eating habits have changed ( eating right before bed and what foods you make be ingesting).
J
Jan DollarJan DollarModerator, RN, retired
Surgeon or GI doc, whichever one you usually see, is fine. I find that my GI is more accessible than my surgeon.

The primary and hallmark symptom of pouchitis is increased frequency. The symptoms you describe could easily be your first warning that things are changing. If you ignore it, you'll likely develop daytime problems too. It could just be a virus, but since it has been a couple of weeks without improvement, it makes sense to follow up with your doctor.

Jan Smiler
Jan Dollar
P phonix2gMember
Before considering pouchitis you might want to go back to when this first started and see if there were any changes at all that you or your body have made. Diet? Time you have your last meal? What your meals consist of? Additional stress that you are taking on? Change in medication? There could be alot of contributing factors. I would just make sure you rule out every possibility you can before you jump directly to the pouchitis diagnosis. I know you said you've had your pouch for over a year but sometimes we tend to forget the little stuff that might mean a world of a difference. Good Luck I'm sure you will find the answers you seek.
P

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