Pamela, you may wish to get a second opinion before having your J pouch removed. In my case, removal of the pouch was necessary for medical reasons, but I had it for 30 years. An alternative to a permanent ileostomy is a K pouch, which I believe is available in the UK and avoids the need for an external ostomy bag. There is a lot of information about this procedure on the internet. I had a similar procedure, a BCIR, which is done at two places in the USA and one in Canada. My surgery went well and my bottom was completely healed when I left the hospital. Pain was worse in the first 2 days oater surgery, but was well controlled with IV pain medications. I am now 7 months post op and doing well with a very good quality of life. Best of luck to you!

Hi Pamela,
I have had my J-Pouch for over 22yrs and like anything else whether its an engine or a jpouch sometimes you need a good mechanic to service it.
If you can avoid the stoma at all costs I would. I would suggest seeking out and do your research on the best surgeons in your country. I'm travelling 15oo miles back to Cleveland to have my engine maker Dr. Strong help me fix mine. I think after all you've been thru it might be worth having a second opinion!!!You're Qol is worth every penny spent . There has been much research done on the subject of pouch revision and much of it has pertained to pelvic floor function and twisting of the pouch, weakening of the sphincter muscles and rectal cuff etc. Clinics in Colon and Rectal Surgery did a publ. edited by Dr. Remzi from Cleveland Clinic and other articles. Be very careful because the artery attached to the mesentery has to be adequate to provide bloodflow to revise a pouch however it is doable by the pro's. Let me know how it turns out. My appointment to see if this is possible for revision is in Jan..I'll post the possibilities!!
Take Care of yourself!!!
God Bless
Tana