I know this has been asked before many times but I know I will get help right away instead of looking through pages.
I am having issues with my jpouch. I have pouchitis since I had my take down in March of 2012. The first year truly sucked (I thought for me). Things get better and then bam nothing put pain and issues. Diarrhea, back pain, anus pain, and leg pain. Then it is like I had a blockage and everything comes out. Even though I didn't feel like I had a blockage, but yet the pain of pushing and hardly nothing coming out and being in the bathroom every half hour maybe I did have a blockage. I don't know. I try and watch everything I eat. I can eat the same thing 5 times and the 6th time is a nightmare. I am on a boat load of meds. Trying to figure them out is a job in itself. So what I am wondering is when does the time come to decide to go with an end ileostomy? And is the end easier then the loop? Also, when I had the loop I had nothing but dehydration problems really bad. I ended up in the hospital 4 times and one time my kidneys were shutting down. But I would rather have to have IV fluids every other day to survive then to go thru this darn pain and total EXHAUSTION.
Any advise would be so grateful. I do have an appt in November with my GI dr. I did just have a scope done. I will say one thing, when I found out I had to have colon all removed he said go with the bag and nothing else. I didn't realize there was anything else until I seen my surgeon. She was great and said, neither one is perfect but you have to have one of them. Both of my doctors are awesome.
Please help me. I am so lost. I just keep begging God to send me a message.
Thanks so much. I have been posting so much on here and I want to say "THANK YOU". It seems like when it rains it pours. But I am thankful for all of you. I truly love the support.
I am having issues with my jpouch. I have pouchitis since I had my take down in March of 2012. The first year truly sucked (I thought for me). Things get better and then bam nothing put pain and issues. Diarrhea, back pain, anus pain, and leg pain. Then it is like I had a blockage and everything comes out. Even though I didn't feel like I had a blockage, but yet the pain of pushing and hardly nothing coming out and being in the bathroom every half hour maybe I did have a blockage. I don't know. I try and watch everything I eat. I can eat the same thing 5 times and the 6th time is a nightmare. I am on a boat load of meds. Trying to figure them out is a job in itself. So what I am wondering is when does the time come to decide to go with an end ileostomy? And is the end easier then the loop? Also, when I had the loop I had nothing but dehydration problems really bad. I ended up in the hospital 4 times and one time my kidneys were shutting down. But I would rather have to have IV fluids every other day to survive then to go thru this darn pain and total EXHAUSTION.
Any advise would be so grateful. I do have an appt in November with my GI dr. I did just have a scope done. I will say one thing, when I found out I had to have colon all removed he said go with the bag and nothing else. I didn't realize there was anything else until I seen my surgeon. She was great and said, neither one is perfect but you have to have one of them. Both of my doctors are awesome.
Please help me. I am so lost. I just keep begging God to send me a message.
Thanks so much. I have been posting so much on here and I want to say "THANK YOU". It seems like when it rains it pours. But I am thankful for all of you. I truly love the support.
