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Do you think we could have a conversation about adhesions? I always post a concern and rarely get more than 3 or 4 responses, so I get a little let down. But, I just wonder what can/should be done for adhesion pain? How many people in our group have/had an issue with scar tissue? How many people have problems like pain? None of the doctos that have cared for me, including Dr. Sonoda at Weill Cornell have been a propenent of lysising adhesions. But, we does one do when the adhesions cause pain. Not pain that is horrible, but more of a nusanace.

I am on Remicade for what my doctor's think is Crohn's. They only one who does not, is my GI doctor. He did the Promethius test which came back interminent. Non of the biopies pointed toward it. But, in Sept. I spend 19 days in the hospital, TPN, steroids... for a fistual, phlagman, and a micorperf of my pouch,and which healed itself. So, the docs treated my as though I have Crohn's.

Now, I'm trying to get ready to go back to teaching, but I have pain (not all the time), in my right side near my hip bone.

I would like to hear from people who may be able to share experiences or things they've read.....

Thanks,

Lisa

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My docs tell me "deal with it". As surgery for adhesions causes more adhesions.

Personally I have found that the more I exercise and move..especially things like yoga and pilates helps more. Also hot baths, massages, etc.

Also if you are having pain after you eat, due to adhesions, try eating smaller meals and eat more frequently, say five or six times a day.

What have you done to try to help with your adhesion pain?
L
Hi Lisa,

I've also experienced some issues with scar tissue. Currently, I am a little over 1 year out from my takedown surgery and overall doing pretty well. I went back to college and did better than I ever have. I met an amazing girl who has changed my world. Most of all I appreciate life again.

Anyway, since my surgeries I've experienced several small bowel obstructions that have placed me back in the hospital. Luckily each time it happens it seems to pass on its own. I usually try to stretch out my whole body and massage my abdomen when I feel a blockage coming on. Sometimes it helps but unfortunately if a blockage wants to occur, it generally will. I've tried to note what I ate that might have caused it, but it seems unlikely that it's solely a consequence of food. My docs haven't been able to give me much advice when it happens as the only thing they can do is wait it out and see if I might need surgery etc. It is however, starting to really become an issue as I've had a blockage every 3-6 months since my takedown.

I'm hoping others on here have worked out better ways of dealing with them, but I haven't found many resources or techniques that actually help with mine.
Mhg26

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