On the other hand, she will be well adjusted to the ostomy/J Pouch (?) psychologically because it will be the only thing she has ever known, assuming she adapts to it well. I wonder though if they will need to make surgical adjustments as she grows. I hope it works well for her. You are right that it will be difficult for the parents who will become de facto ostomy nurses in addition to changing diapers.

I wish I was that young having all this done. I have heard of younger having a colectomy.

Don't wish it Vanessavy...
I was born with this, lived on fluids til 2 and then had my colostomy on my 2nd BD. It leaves scars....no just physically. I have never, ever known life as a healthy, carefree person...I do not know what going to grade school or highschool healthy is like. I only learned what life without pills, pain and suffering (not to mention public humiliation) was like after I recieved the k pouch.
Some people are lucky enough to only retain the physical scars but some continue to be sick forever.
Sharon