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After I eat it takes between 1.5 and 2 hours to reach my pouch, I then spend about 45 minutes going in and out of the bathroom about 8 times. I am actually very very lucky to be fully continent, am in full control of the emptying and there is just no urgency like UC. I have pouch pain during and after the process.

Also, if I eat a meal (not large) a few minutes later I just loose all my energy, have to lie down and feel nauseous. Tend to avoid actual meals and just graze.

Do other people have these issues and have any tips?

Many thanks

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If you are going to the bathroom repeatedly after eating it likely means you have some excessive motility going on, called "spasmodic pouch" by my surgeon. This issue is easily counteracted by anti-spasmodic drugs like bentyl, levsin, lomotil or donnatal, taken 45 minutes prior to meals.

I had the same issue for about a year after takedown and then things began to settle down.
CTBarrister
quote:
settle down.
Posts: 1906 | Location: Connecticut, USA | Registered: April 12, 2007 IP

Ignored post by DJBHusky posted September 12, 2012 04:55 PMShow Post

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Thanks for that. It is good to hear that yours has resolved, sure mine will too. Am taking up to 16 loperamide, which I think is the same as lomotil. I also have buscopan which is an anti-spasmodic think I will try taking before eating. Help appreciated!
K
i had similar issues and was eventually diagnosed with a stricture, meaning my anastomosis was narrowed by scar tissue and that created more frequent bathroom trips. I was dilated by finger in the doctor's office, and then was able to empty better and less frequently. not saying that is what you have, but worth checking out. how far out are you from takedown? i felt nauseous eating until recently. i am 3 months post-op.
fq
I just want to say be careful with loperimide in large quantities and seek the advice of your doctor before taking more than the recommended amount.

While loperimide overdose is not likely to threaten your life. It can cause inflammation of other organs such as the pancreas which has been documented.

additionally, trying to come off loperimide of high doses can cause diarrhea like symptoms, making you think you are not able to be off it when in fact coming down in dose to a recommended amount is the best thing to do long term.
O
I am about 6 weeks post takedown. On May 17 this year I had the single stage operation which took 9 hours, but then got sepsis and they had to do a loop ileostomy a week later. It is interesting being on this site that most people have it done in 2 or 3 stages, which actually makes more sense to me as it gives the J=Pouch time to heal. Saw surgeon last week and thankfully no stricture. Have been taking buscopan (anti-spasmodic) before last 2 meals and things do seem better! Thanks for comments on loperimide which I didn't know, I have been presribed two, three times a day plus one everytime I empty my pouch.
K
Eating does increase peristalsis so if you are early on post takedown, it can take a while to adjust to the sensation. But I would agree that if you are going that much, an anti-spasmodic would be a good option. Hopefully as your system continues to adjust you can eventually reduce or discontinue the antispasmodic.
Spooky

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