Hi all,
Here's how I've handled this issue so far. In 1992, I had the J-Pouch surgery. Complications with emptying my pouch started right away with very little (liquid to PB textured) feces coming out no matter how hard I'd tried. My surgeon suggested that the autonomous nerve linking my internal anal sphincter to the brains had possibly been cut during the J-pouch operation??? He prescribed the use of a catheter (every time I felt the "push") to empty out the pouch. Using K-Y, a huge seringue and distilled water, I was able to liquify the stool enough to empty the pouch and have a comfortable 2-5 hour break in between each defecating (d) session. That was a great relief that lasted nearly 2 years…
In the meantime, I wanted to be free of the all that paraphernalia I had to carry around (like an emergency bag) everywhere I went. So I got back to my surgeon and asked if an other avenue could lead to complete freedom. He proposed I start biofeedback. I did and tried for 12 weeks but it had little to no effect however hard I tried at the clinic and at home with the kegel exercises and so forth… - But afterwords, I never quite understood how biofeedback could work train a muscle on which I supposedly had no control (which connecting nerves was cut????) -
One day, on a normal "d session", just before inserting the catheter inside, I had the idea of pushing hard with a closed fist into my stomach (in the general area of the j-pouch) while banding forward. To my astonishment, I almost emptied the pouch entirely in one push/bend motion. I repeated a few more time and all came out.(gas last)AHHH!!! Wow, that was a happy moment!!!And it's been a great relive since.
Now, 20 years or so later, I still repeat the same movement (~6 X/day) but it started putting a toll on my right shoulder/arm and hand (the one I use to push into my stomach)and possibly my lower back as well(that also gets a lot of pressure) I have to think of yet another way to deal with this issue. I'm not saying that this movement would affect anyone else the same way, but I guess that it depends on how hard and how long you push into your stomach…
Anyhow, I'd like to know what would be your suggestion to deal with a non responding internal sphincter. Would a defecography or anorectal manometry address this issue? If so which specialist would perform such a test?
Thank you
Here's how I've handled this issue so far. In 1992, I had the J-Pouch surgery. Complications with emptying my pouch started right away with very little (liquid to PB textured) feces coming out no matter how hard I'd tried. My surgeon suggested that the autonomous nerve linking my internal anal sphincter to the brains had possibly been cut during the J-pouch operation??? He prescribed the use of a catheter (every time I felt the "push") to empty out the pouch. Using K-Y, a huge seringue and distilled water, I was able to liquify the stool enough to empty the pouch and have a comfortable 2-5 hour break in between each defecating (d) session. That was a great relief that lasted nearly 2 years…
In the meantime, I wanted to be free of the all that paraphernalia I had to carry around (like an emergency bag) everywhere I went. So I got back to my surgeon and asked if an other avenue could lead to complete freedom. He proposed I start biofeedback. I did and tried for 12 weeks but it had little to no effect however hard I tried at the clinic and at home with the kegel exercises and so forth… - But afterwords, I never quite understood how biofeedback could work train a muscle on which I supposedly had no control (which connecting nerves was cut????) -
One day, on a normal "d session", just before inserting the catheter inside, I had the idea of pushing hard with a closed fist into my stomach (in the general area of the j-pouch) while banding forward. To my astonishment, I almost emptied the pouch entirely in one push/bend motion. I repeated a few more time and all came out.(gas last)AHHH!!! Wow, that was a happy moment!!!And it's been a great relive since.
Now, 20 years or so later, I still repeat the same movement (~6 X/day) but it started putting a toll on my right shoulder/arm and hand (the one I use to push into my stomach)and possibly my lower back as well(that also gets a lot of pressure) I have to think of yet another way to deal with this issue. I'm not saying that this movement would affect anyone else the same way, but I guess that it depends on how hard and how long you push into your stomach…
Anyhow, I'd like to know what would be your suggestion to deal with a non responding internal sphincter. Would a defecography or anorectal manometry address this issue? If so which specialist would perform such a test?
Thank you
