Hi! Yes I am currently taking it. Mine is called Paregoric. It says opium tincture 2% as well on the bottle. How much are you taking? I'm up to about 6 x day 10mls-2 teaspoons. And oh gosh the taste. I have to hold my nose every time and then not breathe swallow some water and then breathe. It has works in slowing things down and bulking up. I have severe skin breakdown in anal area due to some incontinence.so we are trying to decrease bm's and am getting a bidet that I hope will help decrease wiping and irritation. I am in pain constantly am on no pain meds and have no quality of life right now. I've been contemplating going back to a perm ileo. But I don't want to give up yet, it's only been six months since takedown. To address the addicted comment,I had about paregoric through someone who has been taking it for over 22 years and now only takes it once a day and holds him over all day. I don't feel any effects from it,not sure what exactly is getting addicted,the intestines yes,because of the morphine but I don't think it will have an addicting affect on you.whats your story? How old are you? What's your diet? I had rectal cancer and FAP. Total colectomy with rectum removed temp ileo and now jpouch.

Just be careful about driving when taking opium, morphine, Demerol etc. because if you are ever in an accident or altercation you might be charged with DUI. Driving under the influence of any mind altering substance can be a DUI. You can be considered legally impaired.
I do hope you find something that will work for you.

I am taking 5ml once a day It was twice a day but seems to work ok with once. I had UC and had colon removal 1 1/2 years ago and 2nd stage last December and 3rd stage in March. 25 BM till I started morphine Now seems to slow everything down to manageable Problem is I am 71 years old and its been tough. Did you understand that you stay on indefinite. My diet was poor and I paid the price. I know better what to avoid. I now take only Imodium and probiotic. Stopped everything else?

Not sure I understand when you said "did I understand I would be on it indefinitely"....my surgeon just said if it worked that's great, but I assumed if it did work that I would be on indefinitely.its that or a bag and I have had the bag already. So does the opium tincture affect you, like groggy, loopy?

No main effect I assumed it was temporary. Expensive Do you have a insurer who covers any.

Yes I have insurance, costs me $25. Otherwise without insurance, from what they told me it would be $700 :/ how about you, insurance?

I used paregoric for several years. I found that over time I needed less of it to achieve the same thickening effect. Eventually I became very averse to using it b/c of the horrible taste, and when I had T3 after a root canal, I saw my GI shortly after and told her what a dream it was. Didn't need the paregoric-the T3 had the same effect. Since then, I switched from paregoric to 30mg codeine sulphate about 2-3x/day. It is a bigger hassle b/c of having to get a hard copy script every month (whereas could get 6 months of refills on paregoric), but much easier to carry around with me, take in public, and just pop with the rest of my other pills.

After the first few weeks on paregoric, I didn't notice any sedating effects, and on 30mg of codeine a couple times a day, I don't either.

Both paregoric and codeine are covered by my insurance.

May I ask what type of insurance works. Mine did not How long did you take the morphine before using codeine sulphate

I had my 3 Stage done at VA. Checked for many problems but none Still high BMs of 20 plus Used Lopermide and others but no luck Had incisional hernia repair from private surgeon who RX morhine sulphate. It has reduced to 12 a day but diarrhea is little and no anal pain. Problem I have is VA reluctant to prescribe morphine out of ignorance. I argue needed for at least 1st year but they say notacceptable treatment except for dying. Can anyone tell me how I can get imfo to persuade. Thanks

Tell them that the many BMs a day are painful and that the meds are the only thing that slow down and "help the pain".

Then ask for a referral to "Pain Management" and they can prescribe a low dose of pain meds or tincture. GI and primary care are becoming more and more worthless when it comes to pain management.

Dan

Morphine would be an unusual choice for intractable diarrhea, and unusual choices make people nervous with narcotics, since the DEA is a nasty and merciless watchdog. The most "standard" opiate treatment for diarrhea that can't be controlled by Lomotil and symptom control measures (e.g. Metamucil to bulk and thicken the stool), as well as proper diagnosis and treatment of the cause, (such as pouchitis), is DTO (deodorized tincture of opium). It can be hard to find a doctor knowledgable enough to prescribe it, or a pharmacy brave enough to dispense it. It tastes awful. Paregoric is the same stuff in a much lower concentration.

I don't think you'd ever get a pain management doc to prescribe these, since they aren't particularly good for pain management. A good gastroenterologist *might* be cooperative, assuming you're willing to cooperate in exploring alternatives that might be better. Opium is kind of a last resort.

Another option is to try LDN, low dose naltrexone which is what Dr Siebecker the SIBO specialist recommended to me last week, others on the SCD yahoo site are using for pouchitis-SIBO symptoms. You will need an RX, a place in FL I spoke with 2 days ago specializes in it, Skips RX www.skipspharmacy.com. My local integrated MD recommended it as well and that company.

The use of morphine sulphate has been working. At 71 I am interested in what works. My surgeon is in favor of its use but the GI department is at odds. That have nothing to offer which will work but suggest I have chrons in the upper esophagus to srgure I should resort to a bag.  It appears I am in a losing battle