I lost my colon and some small bowel to Toxic Mega Colon almost 3 years ago. 7 months later I had my intestine reconnected to the approx 6 cm of large intestine I had left and that surgery was a success. Unfortunately I also contracted Gillian Bare Syndrome (GBS) and spent the next 9 months in a nursing home learning to walk again. The day before I was to be released home I developed my first fistula. I now have 4 fistulas and I've developed adhesions that are causing me to have bowel obstructions and a considerable amount of pain quite regularly. While my surgeon really doesn't want to do more surgery due not only many other concerns always attached to major surgery but also because my abdomen is full of bio-mesh making it difficult to operate. Wile she doesn't really want to go in again we've pretty much decided it time to make some changes. Up until my daughter told me to look into the K-Pouch I'd thought I'd just go back to a colostomy bag and be happy about it. I currently have no life, spend 90% of my life in bed and wasn't even able to attend my daughters Masters Degree Graduation Ceremony or spend any real quality time with my grandchildren.
I have just started researching the K-Pouch but have read one input wherein they mentioned that having fistulas negate the possibility of going with the K-Pouch. Does anyone know about this and the whys and where fors? If this is not a possibility for me I'd like to know sooner rather than later. Your help is appreciated.
I have just started researching the K-Pouch but have read one input wherein they mentioned that having fistulas negate the possibility of going with the K-Pouch. Does anyone know about this and the whys and where fors? If this is not a possibility for me I'd like to know sooner rather than later. Your help is appreciated.