Fistulas anyone?! | The J-Pouch Group

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Laurajp87

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Hi,

I'm new here. I have had my j pouch since 2007. Minimal problems really apart from 2 fistulas I've had for 6 years. I've had failed repairs. Recently I got another abcess and lots of pain and discharge. I went to my hospital and was started on oral metronidazole. I was discharged after 2 days and was booked for an EUA and had this done on Tuesday just gone. Woke up after the op to find out I have 3 new fistulas and they have inserted 4 seton drains. I'm pretty devastated with this turn of events, I'm so sore and bleeding still. I can't sit down properly. I am struggling to eat as everything seems to come straight through me and drains out the fistulas which I can't keep myself clean because of the setons. I'm awaiting an urgent MRI to assess where the fistulas are located as they couldn't see into my pouch during surgery due to a stricture at the pouch join.

Anyway I'm thinking that the only possible treatment is to remove my pouch and go back to a permanent stoma. I'm mentally preparing myself for this. Has anyone else been in a similar situation? I'm feeling very alone right now

MicheladelfinaTXMember

So sorry to hear what you're going through. I had two fistulas at the same time (an RV and one that was in the perianal area) and had to deal with the pain from the seton drain as well. Not sure about what they may advise long-term, but in the short-term, I found that the RX painkillers were no help. I got some relief by using anti-inflammatory meds and very frequent sitz baths as hot as I could stand them, which helped with both the pain and keeping the area clean. I hope this helps and regardless of anything else, remember that you are NOT alone by a long shot.

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