I have had pouch 10 years 2004. It seems to be narrowing and recently has partial obstruction. Had stricture last year and had to stretch. Going for pouchoscopy sept 4 but my doc seems to think I will need to go back to the Ostomy bag. Anyone have similar to this?
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I had j-pouch since 2011. developed strictures and went to see Dr Shen and Dr Remzi in Cleveland a few months ago. They recommended revision surgery. Had first step done 7 weeks ago so I'm back to loop ileostomy for the next several months. Then they will try to revise or build a new pouch. I would strongly recommend going to see them if you can.
Best of luck
Best of luck
Thanks for your reply. I live in Toronto so would not be able to see them. Apparently it would be a better quality of life to have the Ostomy permanently. So you are doing the 2 surgeries all over again?
Lynn
Lynn
Fosty
I have the same problems. I have been dealing with narrowing of my pouch for years. I have thought about going to Cleveland thinking I need a pouch redo and I have been in contact with the doctors there. But I am from Massachusetts area and the last surgeon I seen said I do not need a pouch redo. The narrowing is taken place in two areas, one near the rectum were the staples are located and further up anastomosis area was. I am very gassy and bloated. This has been a very frustrating. So far the only thing doctors are doing for me are treating me with different medications. I am on Simponi and now my doctor wants to switch to a new drug called vedolizumab. Let us know what happens
I have the same problems. I have been dealing with narrowing of my pouch for years. I have thought about going to Cleveland thinking I need a pouch redo and I have been in contact with the doctors there. But I am from Massachusetts area and the last surgeon I seen said I do not need a pouch redo. The narrowing is taken place in two areas, one near the rectum were the staples are located and further up anastomosis area was. I am very gassy and bloated. This has been a very frustrating. So far the only thing doctors are doing for me are treating me with different medications. I am on Simponi and now my doctor wants to switch to a new drug called vedolizumab. Let us know what happens
Will keep you posted. I don't think a redo is in order for me. She feels the pouch is loose now and can't do much else as keep getting strictures and partial obstructions. I guess 10yrs in now with not many problems things start to happen. Will know more after scope on sept 4.