I am new on this site... even if I had a JPouch for 22 years. I am now at a stage where I have to choose between a redo and an ileostomy. I have bleeding problems (that causes severe anaemia), my Jpouch is too ditaled and probably twisted, difficulties to evacuate etc.
This website is a very usefull source of informations but when I read comments, it seems to me that many peoples are more or less happy with their Jpouch. And I feel the same too because I had to pass through some tough periods although I always had in mind that at least I did not have to deal with a bag.
Is my perception correct? Do most people have to deal with repetitive problems (as it is for me)or, I am wrong, and most are happy with their Jpouch? Does it exist statistics about succes rate of Jpouch? And about redo? Deciding between redo or a permanent ileostomy rises this question: Isn't too risky to pass through the redo surgery to get a new Jpouch wich I am not sure at all of the result. For the moment, I feel that the risks related to the surgery (urinary and sexual desorders, etc.) are too important and probabilities of a good quality of life with the Jpouch not high enough.
But, on the other hand, I hate the idea of having an external bag (I already had one for 1 year)
I needed to express myself on this despite my poor english. If any ones have information about the points that I rised, I will appreciate to read them.
Merci!
Rich M
This website is a very usefull source of informations but when I read comments, it seems to me that many peoples are more or less happy with their Jpouch. And I feel the same too because I had to pass through some tough periods although I always had in mind that at least I did not have to deal with a bag.
Is my perception correct? Do most people have to deal with repetitive problems (as it is for me)or, I am wrong, and most are happy with their Jpouch? Does it exist statistics about succes rate of Jpouch? And about redo? Deciding between redo or a permanent ileostomy rises this question: Isn't too risky to pass through the redo surgery to get a new Jpouch wich I am not sure at all of the result. For the moment, I feel that the risks related to the surgery (urinary and sexual desorders, etc.) are too important and probabilities of a good quality of life with the Jpouch not high enough.
But, on the other hand, I hate the idea of having an external bag (I already had one for 1 year)
I needed to express myself on this despite my poor english. If any ones have information about the points that I rised, I will appreciate to read them.
Merci!
Rich M
