Hi All,
I am on the 10th week of a diet to help my chronic puchitis. I've been on flagyl or cipro constantly for over 3 years now. I did a DNA test with my new gastro which pointed to, not conclusively though, that i would be in the camp for chronic pouchitis after my takedown.
Anyway, i've been working with a nutritionist/dietician on a diet based on food sensitivities. I was tested for 150 ingredients/foods and found i was allergic to only one (ginger, which i love) and more minority reactive to other culprits (corn, sulfites, nitrates). I went down to 20 foods i wasn't reactive to and after a month started introducing more and more foods.
Within a couple of weeks most of my constant symptoms (bloating, low energy and crashes, urgency, frequent bathroom trips) went away. I haven't felt this good consistently for years. It is a problem when i have to travel for work as i need to make sure all my ingredients are prepared the right way. It's hard to go to restaurants and you have to ask a lot of questions which is annoying. But i just moved to LA and that seems normal here. You have to plan ahead for road trips, etc. And when you do have an ingredient you used to eat, it feels like you have a severe hangover for a couple of days which isn't fun. But overall if I stick to the diet it's much better. And i've lost 20 pounds which doesn't hurt. My old gastro said that the more weight you have it taxes autoimmune issues.
I'm still on cipro twice daily but i'm going to taper down and see if i flare up once i get off of it. We'll see. I'll still take probiotics too.
I finally got to ones that are generally off limits (cows milk, wheat) and i'm still doing well.
It sounds like the different diets people are talking about are working well. But i also wanted to let you know about this option that's tailored to your specific food sensitivies. It's thought that if you eat too much of the same food your body starts reacting badly to it so that's why it's different for each person. You should vary your foods - even drinking coffee only once every 3 days or so.
Oh, and this wasn't cheap fyi but for me it's been worth it.
D
I am on the 10th week of a diet to help my chronic puchitis. I've been on flagyl or cipro constantly for over 3 years now. I did a DNA test with my new gastro which pointed to, not conclusively though, that i would be in the camp for chronic pouchitis after my takedown.
Anyway, i've been working with a nutritionist/dietician on a diet based on food sensitivities. I was tested for 150 ingredients/foods and found i was allergic to only one (ginger, which i love) and more minority reactive to other culprits (corn, sulfites, nitrates). I went down to 20 foods i wasn't reactive to and after a month started introducing more and more foods.
Within a couple of weeks most of my constant symptoms (bloating, low energy and crashes, urgency, frequent bathroom trips) went away. I haven't felt this good consistently for years. It is a problem when i have to travel for work as i need to make sure all my ingredients are prepared the right way. It's hard to go to restaurants and you have to ask a lot of questions which is annoying. But i just moved to LA and that seems normal here. You have to plan ahead for road trips, etc. And when you do have an ingredient you used to eat, it feels like you have a severe hangover for a couple of days which isn't fun. But overall if I stick to the diet it's much better. And i've lost 20 pounds which doesn't hurt. My old gastro said that the more weight you have it taxes autoimmune issues.
I'm still on cipro twice daily but i'm going to taper down and see if i flare up once i get off of it. We'll see. I'll still take probiotics too.
I finally got to ones that are generally off limits (cows milk, wheat) and i'm still doing well.
It sounds like the different diets people are talking about are working well. But i also wanted to let you know about this option that's tailored to your specific food sensitivies. It's thought that if you eat too much of the same food your body starts reacting badly to it so that's why it's different for each person. You should vary your foods - even drinking coffee only once every 3 days or so.
Oh, and this wasn't cheap fyi but for me it's been worth it.
D
