Spasms - please give me an idea

CJBMember

Hi,
I have an 18 year old j-pouch with relatively few problems over the years. About 6 months ago I was having some problems and had a few scopes and all my surgeon saw was cuffitis. Was on salofalk suppositories for a few months until my surgeon said everything looked great. But I have almost constant spasms - a few times every hour. It is not an urge to go, because when I rush to the toilet there is nothing to come out. The spasm is in my rectum or j-pouch, I cannot tell which. They are painful, especially when there is something in my pouch. I don't think it is pouchitis because I have had it before a few times and I have no other symptoms besides the spasms.

Anybody else experience this or have an idea what it is?? Surely somebody else has had this problem.

Thanks everybody.
C-jay

5/18/1411:25 AM

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grandmaof1Member

I had the same problem. I was put of Bentyl (10mg) and then Levsin/sl (0.125mg). I was using both but have found that Levsin put under my tongue to dissolve worked perfect. I love it!!!!!! I hope this helps you out.

5/20/149:55 PM

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CJBMember

Thanks. Is there a diagnosis that needs to be made for these drugs, or are they a general anti-spasmodic that a doctor will prescribe and see if it works?

I just wish I knew what could possibly be going on in there. Other than these spasms I feel pretty normal. Seems strange after 18 years.

C-jay

5/22/141:53 PM

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LjzMember

My spasms are not painful, but I worry that there is output along with spasm. My doctor prescribed Hyoscyamine, .125 mg every 4 hours. We've increased dosage- double that if needed and I am so relieved with results. There are other names for it, but I too take it sublingualy- under tongue and it dissolves. It is a prescription- ask your Dr. Or nurse. Does give me severe dry mouth, and contact lenses drier than usual. I'll deal with those to have control of spasms! Good luck! Laurie

6/9/1412:13 AM

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CJBMember

Thanks Laurie,
So are you saying that you have a spasm with no pain? So is it just a feeling of an urge and it feels like something just might 'slip' out? Is there a diagnosis of what causes this?

My spasms have been much less frequent lately. But it is still strange.

Thanks for your response.
C
C-jay

6/10/147:54 PM

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BodoniMember

I have a K-pouch and have experienced spasms a few times. I had no pain. My doctor thought it could be a sign of a partial obstruction and he wanted me to get a CT scan. I finally scheduled the tests and the spasms disappeared the day before the scheduled exam. They have never returned. Oh, I may get a little twitch once in a while, but nothing serious.

6/11/143:51 AM

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LjzMember

Yes, exactly! Just urge and sometimes follows actual output. Prior to using hyoscyamine, I would go to bathroom every time felt spasm- you know, just in case ... But the spasms stop with this pill under tongue. My dose is .125 but my fabulous nurse checked and there is a dose .250 so I know I can double if spasms don't stop. Glad yours are getting better! Laurie

6/11/1410:41 AM

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