Hi all,
As the subject states, I have just been diagnosed with Crohns disease after having a functioning J pouch for 8 months. My last pouchoscopy showed inflammation in the pouch and ileum. The dr took biopsies and they came back positive for Crohns. I'm a little confused, worried and upset. I was told in Nov 2013 when I had my last pouchoscopy that my J pouch was fine, no signs of Inflammation. I have always had issues with the pouch since the take down. Diarreah and consistent pain/ cramping. I don't have any blood in my stool and I'm wondering is that normal to not bleed with Crohns? Or is it because I no longer have a colon? Because when I was diagnosed with UC I flared up, I bled. The real crappy part (pun intended) is I cannot eat anything solid anymore... The pain has become unbearable... I don't have a follow up with my specialist for two weeks but I can't go without eating for that long, so this morning I'm going to the hospital where I can at least recurve nutrients via IV and some pain control. My biggest concern is am I going to lose my pouch? I didn't do well with the Illeostlmy. It sent me into a deep depression as I'm only 29, single with no kids. I know it sounds silly but I didn't feel like a normal person (no offense to anyone) but I felt like a freak. One last question, I'm really against taking any cortisteriods like prednisone, what's an alternative if anti biotics don't stop the inflammation and putting me in remission? I heard Cannibas can be used to treat Crohns, is this a common solution? I'm afraid to ask the Dr because I'm not much of a marijuana smoker and my dr even frowns when I ask for pain killers. Thanks in advance for any information you provide.
MJL3
As the subject states, I have just been diagnosed with Crohns disease after having a functioning J pouch for 8 months. My last pouchoscopy showed inflammation in the pouch and ileum. The dr took biopsies and they came back positive for Crohns. I'm a little confused, worried and upset. I was told in Nov 2013 when I had my last pouchoscopy that my J pouch was fine, no signs of Inflammation. I have always had issues with the pouch since the take down. Diarreah and consistent pain/ cramping. I don't have any blood in my stool and I'm wondering is that normal to not bleed with Crohns? Or is it because I no longer have a colon? Because when I was diagnosed with UC I flared up, I bled. The real crappy part (pun intended) is I cannot eat anything solid anymore... The pain has become unbearable... I don't have a follow up with my specialist for two weeks but I can't go without eating for that long, so this morning I'm going to the hospital where I can at least recurve nutrients via IV and some pain control. My biggest concern is am I going to lose my pouch? I didn't do well with the Illeostlmy. It sent me into a deep depression as I'm only 29, single with no kids. I know it sounds silly but I didn't feel like a normal person (no offense to anyone) but I felt like a freak. One last question, I'm really against taking any cortisteriods like prednisone, what's an alternative if anti biotics don't stop the inflammation and putting me in remission? I heard Cannibas can be used to treat Crohns, is this a common solution? I'm afraid to ask the Dr because I'm not much of a marijuana smoker and my dr even frowns when I ask for pain killers. Thanks in advance for any information you provide.
MJL3
