i had my original surgery back in 2001 my dr rolando rolandelli at temple, when he still practiced in philadelphia. he left not long after having operated on me and is in practice at morristown memorial hospital now with his own surgical private practice within that hospital. while it took many years to develop my first of a few polyps following jpouch surgery in the anus/remaining rectal cuff, i must say i am quite scared of this diagnosis. i am being followed every 5 to 6 months with upper endoscopy and pouchoscopy/colonoscopies (my gastrointerolgist does a full back end scop up the ileum on me each time.
i was wondering and wanting to know anyone with fap on here know of any on going studies being done or what lies on the horizon for someone like me with plenty of adenomatous polyps in the rectum. the polyps started to grow in the rectal canal within the last several years. i am constantly looking on medscape/pubmed for any newer articles leading to success stories of patients with fap who take sulindac in rectal suppository form and have sucess in reducing the number of adenamteous polyps in the rectum. my g.i believes celebrex is dangeous due to my having high blood pressure and being on hormone replacement therapy (testosterone). my hemoglobin is normal for a male, upwards of 15-16 when i get it checked so i am not anemic but occasionally i see a small amt of blood in my feces mixed in with the diarrhea. and have occasional abdominal pain.
im not looking for any advice on other surgical procedures. the pouch is not perfect and i have had a diagnosis of microscopic colitis in the past im not looking to part ways with my pouch, just tos ee who else lives with scopes every 5-6 months, has polyps in their j-pouch/anus/bleeds occasionally from them and has a j-pouch. personally, im a one step j-pouch patient, in 2001 the operation took 10.5 hours what should have been 8 1/2 hours back then, today i understand a one step laproscopic assisted pouch can be done in 2-3 hours in the or.
no punctuation because im on an older chromebook and their is no capslock key. my apoligys in advance.
also does anyone years later have an issue with passing water and wet underwear streaks if they dont empty their pouch on an every 1 1/2 to 2 hour schedule? and do polyps adenomatous in the jpouch itself or not cause water to seep out of the anus inbetween bowl movements? there is no smell from the clear liquid discharge and its not mucous because its not thick/chalky like substance but watery and clear.
im available to chat, and have yahoo messenger, if anyone uses chat and wants to have an fap buddy pm me.
additionally im now a 36 year old man.
thx
-len
i was wondering and wanting to know anyone with fap on here know of any on going studies being done or what lies on the horizon for someone like me with plenty of adenomatous polyps in the rectum. the polyps started to grow in the rectal canal within the last several years. i am constantly looking on medscape/pubmed for any newer articles leading to success stories of patients with fap who take sulindac in rectal suppository form and have sucess in reducing the number of adenamteous polyps in the rectum. my g.i believes celebrex is dangeous due to my having high blood pressure and being on hormone replacement therapy (testosterone). my hemoglobin is normal for a male, upwards of 15-16 when i get it checked so i am not anemic but occasionally i see a small amt of blood in my feces mixed in with the diarrhea. and have occasional abdominal pain.
im not looking for any advice on other surgical procedures. the pouch is not perfect and i have had a diagnosis of microscopic colitis in the past im not looking to part ways with my pouch, just tos ee who else lives with scopes every 5-6 months, has polyps in their j-pouch/anus/bleeds occasionally from them and has a j-pouch. personally, im a one step j-pouch patient, in 2001 the operation took 10.5 hours what should have been 8 1/2 hours back then, today i understand a one step laproscopic assisted pouch can be done in 2-3 hours in the or.
no punctuation because im on an older chromebook and their is no capslock key. my apoligys in advance.
also does anyone years later have an issue with passing water and wet underwear streaks if they dont empty their pouch on an every 1 1/2 to 2 hour schedule? and do polyps adenomatous in the jpouch itself or not cause water to seep out of the anus inbetween bowl movements? there is no smell from the clear liquid discharge and its not mucous because its not thick/chalky like substance but watery and clear.
im available to chat, and have yahoo messenger, if anyone uses chat and wants to have an fap buddy pm me.
additionally im now a 36 year old man.
thx
-len