Hello,
I am writing to see if anyone on this site can relate to what my father is going through. In short, he had a J-pouch for 5 years which worked great until he had pain with a hole in the pouch. He had to have a new pouch reconstructed and he is about 6 months out from the takedown. He currently has NO control of his bowels! He is a prisoner to the house and can barely get up to walk without soiling himself to the point of needing a full shower. He has lost 20lbs in 6 months and has butt burn so bad that he is in tears just trying to walk. His doctors here in Philadelphia are baffled and really don’t have any answers for him as all his scans look great. I made an appointment for him to travel to Cleveland to see Dr. Bo Shen on March 4th. At this point the trip there is going to be a challenge because the plane ride could be disastrous. I have read many posts on this site and I do see a lot of people complaining of nighttime incontinence but I never see total incontinence, day and night. If Dr. Shen can’t help him he needs the bag back fast before he is too thin to undergo major surgery. Has anyone ever experienced this?? Any advice, help, or encouragement anyone can give is greatly appreciated!
Thanks in advance,
Bob’s Daughter Karen
I am writing to see if anyone on this site can relate to what my father is going through. In short, he had a J-pouch for 5 years which worked great until he had pain with a hole in the pouch. He had to have a new pouch reconstructed and he is about 6 months out from the takedown. He currently has NO control of his bowels! He is a prisoner to the house and can barely get up to walk without soiling himself to the point of needing a full shower. He has lost 20lbs in 6 months and has butt burn so bad that he is in tears just trying to walk. His doctors here in Philadelphia are baffled and really don’t have any answers for him as all his scans look great. I made an appointment for him to travel to Cleveland to see Dr. Bo Shen on March 4th. At this point the trip there is going to be a challenge because the plane ride could be disastrous. I have read many posts on this site and I do see a lot of people complaining of nighttime incontinence but I never see total incontinence, day and night. If Dr. Shen can’t help him he needs the bag back fast before he is too thin to undergo major surgery. Has anyone ever experienced this?? Any advice, help, or encouragement anyone can give is greatly appreciated!
Thanks in advance,
Bob’s Daughter Karen
