Hi all,
Have been gone from some time as i have been blissfully enjoying my post surgery life. The surgeries, which were brutal, were over and i was doing everything. Life was amazing.
Forward to Sept 22, 2013. I woke with terrible pain in the my right side, opposite the pouch. Many test and hours later, i was found to have free air in my abdomen, or as the er Dr. stated, a perforated bowel. I was told by them moron er Dr. that i was going to lose my pouch. As it turns out, the surgeon who did the emergency surgery at Beaumont hospital found the leak right at the tip of my pouch and said he was able to fix it. I wish to G-d i could have made it to Cleveland, but i was serious trouble. Sigh....
Forward to 4 months later. The repair did not hold and my pouch is still leaking. It has since caused a fistula which has tunneled up to my stomach and discharges through my surgery wound which has not healed because of this. I am pretty much in constant pain and am scheduled to be reopened in Cleveland on April 4th, which cannot get her fast enough. This has been a living nightmare that refuses to end. I wish the Michigan hospital never touched me, but i had no choice.
This sucks.......
It is unknown what caused the perforation. Speculation is a twist or hernia caused the end of the pouch to "pop".
Has anyone ever heard of this or experienced it? My post pouch life was magnificent and i would do anything to have it back. I am so frustrated right now i do not know where to turn. I am praying i will not lose my pouch, but i am no longer confident.
Any thoughts?
Thank you in advance.
Have been gone from some time as i have been blissfully enjoying my post surgery life. The surgeries, which were brutal, were over and i was doing everything. Life was amazing.
Forward to Sept 22, 2013. I woke with terrible pain in the my right side, opposite the pouch. Many test and hours later, i was found to have free air in my abdomen, or as the er Dr. stated, a perforated bowel. I was told by them moron er Dr. that i was going to lose my pouch. As it turns out, the surgeon who did the emergency surgery at Beaumont hospital found the leak right at the tip of my pouch and said he was able to fix it. I wish to G-d i could have made it to Cleveland, but i was serious trouble. Sigh....
Forward to 4 months later. The repair did not hold and my pouch is still leaking. It has since caused a fistula which has tunneled up to my stomach and discharges through my surgery wound which has not healed because of this. I am pretty much in constant pain and am scheduled to be reopened in Cleveland on April 4th, which cannot get her fast enough. This has been a living nightmare that refuses to end. I wish the Michigan hospital never touched me, but i had no choice.
This sucks.......
It is unknown what caused the perforation. Speculation is a twist or hernia caused the end of the pouch to "pop".
Has anyone ever heard of this or experienced it? My post pouch life was magnificent and i would do anything to have it back. I am so frustrated right now i do not know where to turn. I am praying i will not lose my pouch, but i am no longer confident.
Any thoughts?
Thank you in advance.
