Hey everyone, my name is Sam, I'm 16 years old and will be having the 3 step Jpouch surgery this upcoming Wednesday. I'm pretty nervous for the stoma and everything, I was wondering what I should know about the bag and everything, I play baseball, will the bag affect my play? Also, I get sweaty when I'm doing physical activities, does sweat do any harm to the bag?
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Sweat will not harm the bag, It may affect the adhesive of the flange, Good luck with sports I found just jogging with the bag cumbersome. but if it works, good on you.
Murray
Murray
Thanks for the heads up man, ill keep that in mind. -Goody
Good luck with the surgery. I'm due to have step 2 (of 3) next month. Once you get used to changing the bag, the stoma is no big deal. Sweating with the bag will only shorten the life of the bag. I do recommend one item. I was having a ton of irritation to my stoma while working out until I purchased a stomaplex guard. Now I can run, ride my bike, and play baseball and football with my son without any issues. It may be a little expensive ($150), but well worth it. Check out the website when you have a chance - www.stomaplex.com. Again, good luck with everything!!!
Brian
Brian
Thanks man. I will definitely look into a stomaplex guard. Good luck with your surgery next month! Hope everything goes well.
I'd suggest arranging to meet with an ostomy nurse soon, if you can, before the surgery. Your questions can get answered and your concerns dealt with.
I did, just wanted to get some responses from people with bag experience. Thanks for the comment.
When I had an ostomy I used a band with a pocket for the bag. I ordered it from ostomoysecrets.com although there are other brands. I would use a belt for extra security sometimes too. Also for your games and practices, I would suggest looking into a closed-end bag that had a filter - they're only one use but they hold more output, spread it out more evenly so it doesn't bulge so much, and the filter will release the gas that comes out too... Because you know how sports are good at getting us cleaned out
Also when you are sweating a lot just be on the lookout for yeast infections around the stoma.
Expect to have some frustrating moments figuring it out, but I think you'll be pleased to discover that the ostomy really isn't inhibiting- and if you're like most of us, it actually gives you more freedom now that your bowels are under control
Best wishes!
Also when you are sweating a lot just be on the lookout for yeast infections around the stoma.
Expect to have some frustrating moments figuring it out, but I think you'll be pleased to discover that the ostomy really isn't inhibiting- and if you're like most of us, it actually gives you more freedom now that your bowels are under control
Best wishes!
Thanks man, I will check that link out. I can't wait to be feeling good and not have stomach cramps or anything. Being so young having this surgery done is going to suck. What am I going to do! Homework..
Hi. My daughter had her surgery at 15, that was 11 years ago.
Best to you and feeling better!
Best to you and feeling better!
How's she feeling now?
Good luck, I had three steps last year and everything went fine. There will always be minor hiccups, these are complicated surgeries, but you'll get through it.
If you sweat a lot you might need to change your ostomy appliance (the part that sticks to your skin) more often. I had my ileostomy over the summer when it was routinely 100 degrees and I sweat like crazy, it just meant that I changed every three days instead of every four days. No big deal. I did get a little yeast infection like someone else mentioned, but this was easily addressed with anti-fungal powder. The important thing is to stay in contact with your ostomy nurse and go see him/her at the *first* sign of irritation. Most people would say I went to my WOCN too often (probably like 6 times in 7 months) but I never had serious skin irritation, pain, leaks, etc because she helped me nip problems in the bud.
Depending on how vigorous your basketball games are and how long you'll have the ostomy for, you might want to get some kind of stoma guard to protect it in case the basketball hits your stoma. I don't play contact sports (except riding the subway!) so I never explored those options.
Good luck!
If you sweat a lot you might need to change your ostomy appliance (the part that sticks to your skin) more often. I had my ileostomy over the summer when it was routinely 100 degrees and I sweat like crazy, it just meant that I changed every three days instead of every four days. No big deal. I did get a little yeast infection like someone else mentioned, but this was easily addressed with anti-fungal powder. The important thing is to stay in contact with your ostomy nurse and go see him/her at the *first* sign of irritation. Most people would say I went to my WOCN too often (probably like 6 times in 7 months) but I never had serious skin irritation, pain, leaks, etc because she helped me nip problems in the bud.
Depending on how vigorous your basketball games are and how long you'll have the ostomy for, you might want to get some kind of stoma guard to protect it in case the basketball hits your stoma. I don't play contact sports (except riding the subway!) so I never explored those options.
Good luck!
Thanks for the help Liz, I appreciate the comment.
I also recommend some sort of stoma guard if you are a catcher. Otherwise, I don't see you taking many abdominal shots. I'm guessing you'll feel so much better in general that you won't mind the stoma so much!
http://www.ostomyarmor.com/
http://www.ostomyarmor.com/
Doing mostly okay. Hope you feel better soon.
I had what you are having and if you are healthy, it stops you from nothing. The end ostomy was worst for me as I was not yet a pro at keeping skin clean. KEEP THE SKIN AROUND THE OSTOMY CLEAN? If you play sports, ask your doc about lomotil. They tend to wait til you are fully hooked up again to offer the drug but, in sports, a bag of poo is much less of an issue than a bag of brown water with some solids. It is a quality of life issue for you. The second loop ostomy is a breeze and just lasts a few weeks. Funny thing, due to nerve location, the ostomy hole hurts far more than the vertical abdominal cut
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