Hi
I had afferent limb syndrome with ulcerative colitis in the retained rectal cuff. I had pouch advancement/musectomy done and had a temp ileo for 3 months. Then it was reversed. They initially hoped to do it with small excision but ended up with full laparopomy. it was very tough surgery. Once recovered it was worth it.

I'm pretty sure that was what I had before I had my pouch revision. It was a case of the part of the pouch that was attached to the small intestine was so stretched out and/ had grown so big, that it would kink and cause obstructions.

The doctor took off the huge extra part of the pouch, the size of a basketball, and reattached the sm. intestine to the healthy normal part that was already attached to the rectum. So no ileo. The expected stay in hospital was 5-7 days but I was released earlier because I got up (not during surgery ) and walked quite a bit and got the system working quickly. It was very worth it! Jpouch is working so much better now.

Thanks for sharing your experiences. I am booked for surgery on 12th Feb. Winter wish I see that you are in Dublin - who did your surgery and where?

I don't want what Winter wish had but I'd like the results as then I'd be rid of my chronic cuffitis! (I don't have afferent limb syndrome.)

Best of Luck kiwiPouchin!

Update:
I had the surgery as planned last week. They fixed the afferent limb/prolapse/partial obstruction by pexing the pouch and the afferent limb back into place. I only hope it lasts. Luckily for me (I guess) they didn't need to re-sect the pouch inlet as they had expected, and also I was pleased to wake up without a bag (as expected). The hospital stay was 4 days, so I came home Sunday. I have been suffering from bad nausea and no appetite, and lots of abdominal bloating and cramping. It seems to be slowly sorting itself out now, and I started eating a bit yesterday. I really forgot how horrible these recoveries are, which is probably just as well because I wouldn't have done it otherwise! Just weighed myself and have lost 3.5KG in 6 days.

I feel for you in recovering from surgery. What else could you do? I hope all is fixed and all the pain and suffering will end soon.