Skip to main content

Ok I decided I'm going underground with the blessing of my GI but it will have to wait for 3 weeks as my son is my best donor option. So I'm going to research the hell out of it and make sure he gets the right stool test? I think Ill have my hubby as a backup and get him tested as well. I'm running out of options and if I lose this pouch well then I have tried everything? I will let everyone know when I start. I'm just angry that there is no medical facility to have this done in when their r GI doctors whom believe in it and people have to do this without being under medical care. I wish I was rich and I'd go to Australia to Dr Brody's clinic.

Replies sorted oldest to newest

You don't have to go to Australia, as there are clinics in the U.S. Right now, it is mostly only used for treatment of C. diff, but some are applying for approval for use in UC. Here is one in Portland, Oregon, and they assist with home fecal transplant and distance consultation:

http://fecalmicrobiotatranspla...on.com/FMT/home.html

But, home fecal transplants are becoming more of a viable alternative:
http://thepowerofpoop.com/medi...me-fecal-transplant/

Good luck and let us know how it turns out!

Jan Smiler
Jan Dollar
Cornel my hospital, is applying, they only do for c diff as the one in the Bronx. I asked if there was a hospital but others too are only approved for c diff. I'll look at Portland but that too is quite far. And then of course! will my insurance cover this? Ugg, I'm still paying out of pocket for these meds having not met my deductible yet.
AllyKat
How do u do it? Did u have your donor tested? How much of a enema solution would u need for a pouch? I'm ready! I read you have to do it at meat 5 days in a row. I might need 2 donors like my son and hubby. And how long do u hold it? With a pouch that worries me especially since I read it has to be fresh and my poppers usually go in the am! ugg! this could be a problem.
AllyKat
Ally Kat
Thanks for your post. I am in dire need of a fecal implant and have spent a lot of time researching. It not not be done by a medical facility unless you have diff or crohns and my crohns is not conclusive. There are two books on how to do on your own and a md in FL who will help with phone consults. I am out of the country now and not in front of my notes but will get back to you. Can you pm me and I will get you all the info after the 8th of January when I return. We should talk. Dr Shen said my pouchitis wouldn't qualify me at CC. But I will ask again when I am there end of January.
C
I did a lot of research on fecal implants since Shen told me I had SIBO but he also told me Cleveland Clinic couldn't do one for me with my pouchitis and last week when I saw him said it probably wouldn't help much. I didn't ask why as I was still a bit drugged up from my balloon dilatation. I have tried every source in the USA I could find and found none that would do it for me. The MD at Einstein Hospital in NY, Dr Brandt won't return and emails when I ask about doing one for me. After hearing from Dr Shen it might not be as helpful i might not pursue as aggressively.
For those who are interested. the two web sites devoted to the subject are www.thepowerofpoop.com and www.fecaltransplant.org
C

Add Reply

Copyright © 2019 The J-Pouch Group. All rights reserved.
×
×
×
×
Link copied to your clipboard.
×