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I am looling for some suggestions of an excellent GI Doctor(s) or practice and hoping they specialize in Nutrition Therapy. If they do not do both, I have no problem finding another doctor who works with Nutrition.

I have had a J-Pouch since Jan, 1994 and have had Pouchits many times although I currently do not have that according to my doctor. I had a CT Scan that came out negative so I do not have Crohn's Disease and I have another GI who is giving me the Hydrogen Breath Test.

I am actually hoping they find out what is wrong because so far, all my tests are negative.

But I have had terrible problems with Gas and Bloating.

Below is an earlier posts.

On earlier posts, I thought that my problems were related to Rice Milk but now that is not the case. Last month I was tested for Crohn’s Disease and I had a CT Scan with dye and that came out negative. I don’t have Pouchitis at the moment. But one thing is certain, something is not right with me and I have been having these problems off and on, more on then off, since this past April.

My symptoms are Excessive Gas, Bloating, and Stomach Pain. I have to pass Gas just about every hour. Even after I am able to pass Gas, I know there is so much more inside but it is not ready to be released just yet. That is so frustrating.

I get these symptoms no matter how much or little I eat or even what I do eat. I take 4 Beano’s before I eat and then with food, I will take Digestive Enzymes. In between I will take Activated Charcoal and also I have a script for Dicylomine. I sleep with a heating pad on top of my gut. Still, symptoms never go away. I wonder if doing this is doing any good at all? Does not appear to be.

So I saw a different GI that I had seen before and I am scheduled for a 3 hr. breath test next Wednesday to determine if I have Bad Bacteria. I had this test done 2 years ago and that was negative. I had blood tests taking 2 days ago and my doctor called me this morning telling me the blood work was normal.

I will also have to provide the lab a stool test. One will test to see if I have C Diff (I suggested that) but the doctor does not think that is the case with me because he said without a Colon, the odds are against me having that. I can’t remember what the other two stool tests are for.

BUT ONE THING IS CERTAIN, SOMETHING IS NOT RIGHT WITH ME AND TO BE HONEST, I AM HOPING THEY FIND SOMETHING SO IT CAN BE TREATED WITH ANTI-BIOTICS. I JUST WANT TO HAVE A LITTLE BIT OF COMFORT OR SOME NORMALCY IS ALL. I WILL EVEN SUGGEST AND ASK MY GI IF I AM A CADIDATE FOR THE FECAL TRANSPLANT?

HAS ANYONE ELSE HAD SIMILAR PROBLEMS OR DO YOU HAVE ANY SUGGESTIONS THAT I CAN SUGGEST TO THE DOCTOR WHEN I SEE HIM NEXT WEEK?

THANK YOU

Rocket

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Thanks Liz,

This morning I gave the lab the 3 stool samples that they needed. I just want to get to the bottom (pardon the pun, not intended) of this whole thing.

This whole thing is causing me lots of stress and between that and I am going through a divorce, I have a lot of things to deal with.

I looked at the link you provided for low FODMAP Diet. Thanks for attaching that link and for sharing.
R
Last edited by Rocket
Hi. My daughter's great surgeon in NYC had a nutritionist that came in before the doctor during the last 2 office visits she had. This nutritionist suggested my daughter go on FODMAP. Prior to my daughter's surgery in July she went on the FODMAP to try to help with her pain, gas and bloating. FODMAP was suggested by the nutritionist and also her NYC GI dr. When she was on the FODMAP, while time consuming to prepare, she did reduce her gas and bloating and pain. I think it took a few days to a week into the diet before she felt better. My daughter's situation was different as she had a very tight stricture that eventually required a resection. Since she is post op she has not gone back to FODMAP, but I would think it is worth a try.

If you would like, I can ask her if she remembers the nutritionist's name and number.

Hope you get relief soon.
B

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