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Hi Everyone,

My 30th anniversary since my take down is only 2 months away (Jan 5, 1984). I was one of the first in Montreal to have a j-pouch constructed at the Ste. Justine's Hospital (French children).

I must say that for the most part (25 years), things have been relatively good.

Unfortunately, my pouch has grown a mind of its own, and I am on a waiting list for jpouch reconstruction surgery at one of the local hospitals.

Has anyone had a pouch this long or longer? How has jpouch life been for you?

I am currently living with a bag (ileostomy for which I had an operation April 2013) until reconstruction surgery, which is tentatively scheduled for January 2014. In all honesty I hate living with the bag.

Hope to hear your story.

Best Regards,

Solomin

Replies sorted oldest to newest

Solomon
I have only had my pouch for over two years and have had a number of issues since then. It seems finally things have become more tolerable for me. I'm sorry you are on a waiting list for surgery but it is good to hear there are things that can be done to correct a malfunctioning pouch and to hear how long you had a successful one. I hope you feel better after your surgery and get back to living life as you were prior to your pouch issues. Please keep us posted as to how you make out.
J
The surgery I require needs a skill that not many surgeons in Montreal (where I live) have.

The priority for surgeons is cancer patients. There is also limited amount of operating room time available.

A year wait is not to be unexpected with the state of the medical system here is Canada (same for Ontario also) when surgery is classified as elective.
S
Wow. Sorry to hear you have to wait.

We hear such glowing stories down here about what a wonderful health care system Canada has. It was one of the reasons politicians used to convince us to switch to Obamacare.

But, it is encouraging that your pouch lasted so long. That will ease the minds of many who wonder what lies in their future.

Good luck!

(I lived in Kanata for a few years. I love Canada.)

David
P
As with any healthcare system, Canada has its pros and cons. Universal healthcare, no one is denied access, but we can have longer wait times for certain specialties or procedures, particularly if you are not an urgent case. I've waited longer than 4 months for specialist appointments, and had my own takedown bumped for more urgent cases (however I should mention that my first surgery was done on an emergency basis, so I likely bumped a few people myself). But I don't think any healthcare system, anywhere, is perfect. We ALL have a long way to come.
Spooky
I went from Canada to France which also has a universal health care system...used to be great...now, not so much.
We can wait up to 6 months for an appt with a Rhumey or eye doc, surgeries (unless you go private = you pay out of pocket for better doctors and quicker appts) can take months too...waiting lists are very common...plus we have a No-Pay university system here where all kids can go for free but graduates must 'pay back' by working a certain number of hour/days per week/month to the university hospitals...and that is until pretty much the end of their career. So even in private practice most doctors go to work at the university hospitals once a week...They say that it evens the playing field (it is socialist here), but I am not so sure...what it does is level everything out to the lowest common denominator. We have a doctor shortage and are now importing them from the ex-Estern Block countries, expecially Romania. I go to 1 of 2 GPs here who does not give appts...its a walk-in system...I have often gone there only to wait 4-5hrs and finally give up and leave in disgust.
I guess that that is how the plan to plug the hole in the healthcare budget here...people just give up and don't bother...
By the way, the system is so bankrupt that its budget is bigger debt than most medium sized countries.
Sharon
skn69
Mine will be 25 next March. Knock on wood, no issues for me but a recent blood test showed me having low triglycerides so my dr thinks I might have malabsorption issues. Wouldn't be surprising with no colon! I'm currently on a digestive enzyme to see if it helps. We are a small group so it's great to see others with long term pouches. I hope you are able to get your surgery and feel better soon.
K
Not sure, just an interpretation of my blood work by my chiro. All other blood counts came back fine, just low triglycerides at 53. But I think some drs would think that's normal. I did work out before the draw which I understand can drop your triglycerides. I'm taking these digestive enzymes for a few months then will get retested. We'll see.....
K

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