Let us know how you do and good luck!

C.E.M.

Thank you

Rocket

Are you still waiting for test results?

Hi Marianne,

I think God is trying to teach me the art of patience.

I was scheduled to have test results 3 weeks ago on Sept 25th, exactly a week after I saw my doctor. But the Lab called me to tell me that they did not get approval from my Insurance Company. So then they rescheduled me for Sat, Sept 28th. However, the Lab called me again to reschedule for the same reason.

Not I am getting frustrated and they cannot reschedule until they get approval.

So then Lab calls me back and I said has the approval gone through and they told me NO because my doctor's office had the wrong codes.

The Lab calls me back early last week and I get the approval for my test last Friday, Oct 4th. It was disgusting. I had to drink 3 bottles of this Barium stuff and I had to consume it every 15 minutes in order for them to do the CT Scan.

I asked if they could mix in some Chianti with it but was denied. So then I have this test and they have to stick me twice and that was nerve wracking because the Tech said if they can't get this to work it will have to be postponed. Anyway it finally was worked. I asked them when will my doctor get the results and they said by Monday, Oct 7th.

Then I had the trots until after midnight from all this ugly disgusting drink that I had to have.

So I call my doctor to make an appt and he is on vacation all this week. So I won't see him until next Wed.

Thank you for asking.

Rocket

Ugh so sorry. I think I had this same test done when then were trying to rule out Crohn's before my surgery. (Small bowel series or something like that?) I remember drinking that awful stuff every 15 minutes or half hour and then them taking pictures. The test took over two hours. In the end they said my small intestines looked perfect. So onward with surgery I went.

I hope you get some answers when you see him on Wed. Keep us posted. Will be thinking of you.

I will. Thank you. Have a great weekend.

Rocket,

The test is called a CT Enterography and the beverage you drank is called volumen, which is a barium sulfate suspension. I am surprised they did the CT Enterography as opposed to the MRI Enterography which I think may be a better diagnostic tool. I had both done. You drink volumen in timed intervals with both procedures and both procedures take over 2 hours (MRI is longer and takes closer to 3 hours). The only difference in the procedures is that the MRI Enterography is a bit noisier and with the MRI they inject you with glucophen in order to slow the bowels down. Glucophen causes nausea and vomiting in 50% of injectees, but I happened to be in the 50% that tolerated it, as I did not vomit in the basin they gave me nor did I feel nauseous. Although the contrast burned terribly when they injected it.

You may want to ask your Doctor whether the camera endoscopy may be a viable diagnostic test based on your situation. I am told it's better than the CT and has become safer.

BTW I found the volumen tolerable if you drink it rapidly and do not savor the taste. It's not exactly something I would order at my local pub, but as a 41 year IBD veteran I have tasted more vile substances, including liquid potassium which is really gross.

Good luck.

That food list was very interesting!

I never would have guessed that eggs would be in the "good" column for crohn's.

If I eat eggs, I have to make sure they are a minor component of a larger meal, or they give me no end of grief.

I'd trade my right leg to be able to eat eggs at will. Poached, 2-minute, fried, omelets, scrambled..... Sigh.



.

CT,

I will talk to my doctor about the MRI Test tomorrow when I see him. He may want to schedule the MRI test, who knows but I will ask him.


PDX David,

Glad you fouud that food list interesting. I must say since I have not had Rice Milk since October 11th, thus far, I have had no pain, cramps and a lot of Gas. Perhaps this was my problem all along.

I sure hope that my test resuls show nothing serious.

Rocket

Got my results yesterday. The CT Scan was negative and the doctor agreed with me that it was the Rice Milk giving me so many problems. Then he scoped me and all was clear so for now I am off the meds.

Rocket

Glad to hear it's not a Crohn's diagnosis. It's amazing how something innocent like rice milk gave you so much grief. Hope you continue to feel better.

Thanks Marianne,

The Rice Milk was the last thing I thought it was because I have been drinking Rice Milk for at least 15 years if not more.