Hi All!
Just like to say a big thank you to this site and the wealth of information from all its members, (especially Jan!) it's helped me answer some worrying questions ive had in my mind over the past years, and its been invaluable when access to medical advice is very slow (particularly true here in the UK)
I was diagnosed with Chronic Pancreatitis when i was just 12, 2 years before i developed UC. I've never had any problem with my pancreas since, even after all the surgery i had when i had my colon removed back in 2003 due to a severe flare of UC. I have had a good 10 years out of my pouch, with no pouchitis etc, until things began to go a bit haywire recently. My pouch function seems to have been knocked out of sync, sometimes feeling very blocked and swollen, watery consistency, tiny spots of blood when straining to go (very small) and sometimes pain after going like when i had UC. All these symptoms sound like a mixture of Pouchitis, Cuffitus and maybe IPS, although they all come and go, it is never constant. I have also developed twinges of pain throughout my whole upper and lower abdomen, which feel spasmodic as they only last a brief couple of seconds, although they do appear to be concentrated more on the left side. Also my stools (when they are semi formed) are floating more than usual (i think) The problem is i never paid any attention to my stools much before this, so i wanted to know how many of you J-Pouchers have floating stools after visiting the bathroom?
I guess my question is: could IPS, etc be causing these changes, or should i be more worried about my Pancreas that i havn't had any problems with all these years?
I have appointments booked with my pouch specialist (Nov 14th) and an U/S of my liver and pancreas (Oct 29th) Due to abnormal liver results, liver enzyme was raised to 150 so possible fatty liver disease. I think you can appreciated the waiting times are quite long to be spent worrying!
Any info/advice would be much appreciated!
Thank you,
Cez
Just like to say a big thank you to this site and the wealth of information from all its members, (especially Jan!) it's helped me answer some worrying questions ive had in my mind over the past years, and its been invaluable when access to medical advice is very slow (particularly true here in the UK)
I was diagnosed with Chronic Pancreatitis when i was just 12, 2 years before i developed UC. I've never had any problem with my pancreas since, even after all the surgery i had when i had my colon removed back in 2003 due to a severe flare of UC. I have had a good 10 years out of my pouch, with no pouchitis etc, until things began to go a bit haywire recently. My pouch function seems to have been knocked out of sync, sometimes feeling very blocked and swollen, watery consistency, tiny spots of blood when straining to go (very small) and sometimes pain after going like when i had UC. All these symptoms sound like a mixture of Pouchitis, Cuffitus and maybe IPS, although they all come and go, it is never constant. I have also developed twinges of pain throughout my whole upper and lower abdomen, which feel spasmodic as they only last a brief couple of seconds, although they do appear to be concentrated more on the left side. Also my stools (when they are semi formed) are floating more than usual (i think) The problem is i never paid any attention to my stools much before this, so i wanted to know how many of you J-Pouchers have floating stools after visiting the bathroom?
I guess my question is: could IPS, etc be causing these changes, or should i be more worried about my Pancreas that i havn't had any problems with all these years?
I have appointments booked with my pouch specialist (Nov 14th) and an U/S of my liver and pancreas (Oct 29th) Due to abnormal liver results, liver enzyme was raised to 150 so possible fatty liver disease. I think you can appreciated the waiting times are quite long to be spent worrying!
Any info/advice would be much appreciated!
Thank you,
Cez
