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W
I called everyone on this list today August 19, 2013 and in bold I have made notes

Dr.Gregg Shore- (NO LONGER AT THIS PRACTICE)DR SHORE NO LONGER DOING KOCK POUCHES AND ALL THIS INFORMATION SHOULD BE DELETED
1201 5th Ave.N.,St. Petersburg , FL 33705
888-825- 1495
http://www.intestinalcontinence.com

Matthew Vrees, MDDR VREES DOES NOT DO KOCK POUCH SURGERY NOR DOES HE MANAGE THEM PER HIS OFFICE
Rhode Island Colorectal Clinic, 334 East Ave, Pawtucket, RI
401-725-4888
http://www.ricolorectalclinic.com/physicians.htm

Dr.Jeffrey Milsom
1315 York Ave.,NY,NY 212 746 6030
212-746-5597 this is number for NY presbyterian hospital and should be deleted
http://www.cornellphysicians.com/jwmilsom/

Dr.Joel Bauer, Dr.Stephen Gorfine and Dr. David Bub
25 E. 69th St. NY,NY 10021
212-517-8600
http://www.colonsurgeryinfo.com/

Dr. LaunerHe is deceased
Dr Michael Jonathan Worsey (trained by Dr. Launer)
jworsey@advancedsurgical-sd.com
Dr.Gail Salganic (trained by Dr. Launer)
gsalganick@advancedsurgical-sd.com
Scripps Hospital
Advanced Surgical Associates of San Diego
9850 Genesee Ave.Ste. 201 LaJolla,CA 92037
858-558-2272
http://www.advancedsurgical-sd...tent&task=view&id=23
http://www.advancedsurgical-sd...tent&task=view&id=25

Dr. Donald Schiller BCIR
9808 Venice Blvd, Ste 603, Culver City Ca 90232
310-204-4565
http://www.ileostomy-surgery.com

Dr. Fazio, Dr. Feza Remzi, Dr. David Dietz and Dr. KiranDr Fazio is no longer available and his name should be removed
Cleveland Clinic, 9500 Euclid Avenue,Cleveland, OH 44195
800 -223-2273
http://www.ccf.org
http://my.clevelandclinic.org/...ry/3/Staff_2393.aspx
http://my.clevelandclinic.org/...ry/5/Staff_4088.aspx

Dr. Robert Wexner is a surgeon at the Cleveland Clinic in Weston, Fl. He mentioned to a member he does a few KP's per year. A possible option. Dr Wexner does not perform kock pouch surgery, he did one several years ago in conjunction with a BCIR Dr for a special case

Dr. Alex Ky-Miyasaka-Dr Ky never did kock pouch surgery nor does she manage them
Mt. Sinai, 5 E. 98th St #11,NY,NY 10029
212-241-3547
http://www.mountsinai.org/Find...842&officeDrawer=pat



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Dr. Robert Beart
Colon Rectal Surgery Institute
222 W Eulalia St Ste 100A
Glendale, CA 91204
(818) 244-8161
http://www.glendalememorialhos...ery_Institute/202006

Dr.David Sung
1260 15th St.,Santa Monica, CA
310-395-6123

Dr. Ernest Rehnke BCIR
The Palms of Pasadena Campus BCIR Unit, Petersburg , FL 33705
800-336-0789
http://www.bcir.com

Dr Paul Williamson This practice does not do kock pouch surgery or manage them delete the info
110 W. Underwood St.,Orlando, FL 32806
407-422-3790
http://www.crcorlando.com

Dr. Rolando Rolandelli He does not perform kock pouch surgery
95 Madison Ave., Ste 304C, Morristown ,NJ 07960
973-971-4105 or 973-971-7200
http://www.dr-rolandelli.com/m...team/rolandelli.html

Dr.Robert Jacobson
3409 Worth Street, #500 Dallas, TX 75246
(214) 824-1730‎
http://www.baylorhealth.com/Ph...sician.aspx?pid=2146

Dr.Sandy Fogel REMOVE
213 McClanahan St SW, #404, Roanoke,VA 24014
540-342-6346 number out of service
http://www.carilionclinic.org/...ysician&phyID=135028

Dr. David Beck Yes and very experienced spoke with him personally
1514 Jefferson Hwy.,New Orleans, LA
800-348-7875(outside LA)1-800-874-8984
http://www.ochsner.org

Dr. Susan Galandiuk(learned from Dr Fazio) remove this info she does not perform or manage kock pouch
University of Louisville Colon & Rectal Surgery
550 S. Jackson Street, Louisville, KY 40202
502-852-4568 502 583 8303
susan.galandiuk@louisville.edu
http://www.louisvillesurgery.c...ctors/galandiuk.html

Dr. Guy R. Orangio does not perform or manage kock pouches
Atlanta, GA
770-995-9528
http://www.gcrsa.com

Dr Kaiser (Kock pouch and Tpouch)
USC Norris Cancer Center and Hospital
1441 Eastlake Avenue
Suite 7418
Los Angeles, CA 90033
akaiser@usc.edu
http://www.usc.edu/schools/med....php?PersonIs_ID=540

Replies sorted oldest to newest

L lynne-saMember
I have known for some time that Dr. Fazio no longer performs surgery, but is he still at the Cleveland Clinic in some sort of administrative post?

I have heard he had serious health problems and I strongly hope that he is well now because I think so very highly of him. He succeeded in helping me during two surgeries and he was as kind and gentle as he was talented and famous. I also loved to hear his descriptive Australian expressions, like "she's at the end of her tether" and referring to my k-pouch as "pristine" -- such an odd word for a waste-holding pouch!

A local colo-rectal surgeon here in Virginia deduced that Dr. Fazio was at least alive because the surgeon would have heard otherwise. I do hope he's enjoying whatever he's doing now. Does anyone know what he's doing and where?
L
JaniceMJaniceMMember
U.S. in no particular order:

Dr.Joel Bauer, Dr.Stephen Gorfine and Dr. David Bub
25 E. 69th St. NY,NY 10021
212-517-8600
http://www.manhattansurgicalas...icians-DrBauer.shtml

New location! Dr Kiran (from the Cleveland Clinic!)
Herbert Irving Pavilion Room 8th Fl.
161 Fort Washington Avenue
New York, NY 10032
Phone: 212.342.1155
http://asp.cumc.columbia.edu/f...118&DepAffil=Surgery

Dr.Jeffrey Milsom
1315 York Ave.,NY,NY
212 746 6030
weillcornell.org

Dr Michael Jonathan Worsey (trained by Dr. Launer)
Scripps Hospital
9834 Genesee Ave.Ste. 201 LaJolla,CA 92037
858-558-2272
http://sdcolonrectal.com/

Dr. Donald Schiller BCIR
9808 Venice Blvd, Ste 603, Culver City Ca 90232
310-204-4565
http://www.ileostomy-surgery.com

Dr. Feza Remzi, Dr. David Dietz
Cleveland Clinic,
9500 Euclid Avenue,Cleveland, OH 44195
800 -223-2273
http://www.ccf.org

Dr. Robert Beart
Colon Rectal Surgery Institute
222 W Eulalia St Ste 100A
Glendale, CA 91204
(818) 244-8161
http://www.glendalememorialhos...ery_Institute/202006

Dr.David Sung
1260 15th St.,Santa Monica, CA
310-395-6123

Dr. Ernest Rehnke BCIR
The Palms of Pasadena Campus BCIR Unit, Petersburg , FL 33705
800-336-0789
http://www.bcir.com

Dr.Robert Jacobson
3409 Worth Street, #500 Dallas, TX 75246
(214) 824-1730
http://www.baylorhealth.com/Ph...sician.aspx?pid=2146

Dr. David Beck
1514 Jefferson Hwy.,New Orleans, LA
800-348-7875(outside LA)1-800-874-8984
http://www.ochsner.org
Member said: very experienced spoke with him personally

NEW: Dr Kaiser (Kock pouch and Tpouch)
USC Norris Cancer Center and Hospital
1441 Eastlake Avenue
Suite 7418
Los Angeles, CA 90033
email: Kaiser_a@med.usc.edu
http://www.surgery.usc.edu/col...-kaiser_andreas.html

OUTSIDE US:

Dr. Zane Cohen, Dr. Robin McLeod
Toronto, Canada
416-586-8346
http://www.mountsinai.on.ca/ca...-cohen-m-d-f-r-c-s-c
http://www.mountsinai.on.ca/ca...mcleod-m-d-f-r-c-s-c

Dr. Brian Taylor (BCIR)
339 Windermere
London, ON
519-685-8500(519) 663-3209

Prof Jack Mackay at St Vincents Melbourne
(NEW surgeon training by Dr Fazio)
Telephone: +61 (0)3 9895 7633
Director of Epworth Eastern Private Hospital
http://www.epworth.org.au/Eastern/Home.aspx
Melbourne Australia

Professor Neil Mortensen (KP ONLY)
Dept Colorectal Surgery
John Radcliffe Hospital
Oxford OX3 9TATel +44 (0)1865 220926
email: Neil.Mortensen@nds.ox.ac.uk

NEW KP (not BCIR) surgeon: Mr Graeme Wilson
Western General Hospital
Colorectal Surgury
Edinburgh, UK0131 537 1000 (Main Hospital Number - ask for his sec)

Hans Wasmuth, St. Olavs, Trondheim
Tom Øresland, Ahus, Oslo
At Ahus they are now having a clinical trial on making a mechanical nipple by using a titan implantat with a lid.

Dr Leif Hulten, Goteborg , Sweden (retired but teaching) leif.hulten@surgery.gu.se

Prof. Helge E. Myrvold, Trondheim, Norway +47 95055225 (retired but in the loop)
JaniceM
JaniceMJaniceMMember
quote:
Dr. Gail Salganick is gone from Dr. Worsey's practice. Dr. Biermeister has joined the team and I am assuming he will be assisting with Dr. Worsey


Dr Salganick is planning on joining her husband's practice in Chula Vista CA in Jan 2014. I will call her then and see if she will be performing KPs.

Also, Dr Biermeister will not be doing KPs.
JaniceM
DH Donna HMember
That's strange that someone would tell you that since on Oct 29, Dr. Bermeister was right there assisting Dr. Worsey with my surgery. And like I said, Dr. Worsey said he is young and smart and on his way to be a KP surgeon. Hey, maybe after a few surgeries he decided it wasn't for him or maybe he is moving on to another location.

And good luck with your surgery, Janice. It's sounds like it is very complicated and I am wishing you the best. You are doing your homework and getting the best of surgeons.
DH
W woodstock69Member
Update regarding Dr Beck in NOLA.

He revised a kp, valve and stoma in November in 2.5 hrs. Excellent surgeon, unfortunately complications post op lead to drain for old hematoma and abscess drain, longer than expected stay, on call weekend staff not part of Beck's team and did not meet any patient needs, dismissed the cries for help and overlooked the abscess which was not dealt with for 4 days post op and still recovering and on TPN. Indwelling catheter was in much longer due to the abscess and fistula.
Follow up next week with scope and CT scan to determine why abscess is still present and what will be done. Pain persists where abscess is and since incision closed and drain was pulled prematurely by local radiologist who did not know what he was looking at there is no place for any fluid to leave the body and there is no follow up care locally. A local General surgeon was seen who interned with Dr Beck and admitted right away this was beyond his scope, he never even ordered a PICC line or TPN. He learned. Dr Weiss at Cleveland Clinic in Weston had agreed to do follow up however he never saw the stricture when he did the first scope as he does not know K pouches either. The k pouch really does require a skilled surgeon.

Now, As for Dr Fazio, he is alive. He is not at Cleveland Clinic in any capacity.

Jan was correct, I only meant he was no longer there when I made the edits to the list.

NOLA is an awesome place, great food and sights to see and much better than Cleveland.

Oschner is a teaching hospital like CCF and lack of continuity of care is an issue there as it was in Ohio. I do believe every patient has a different experience.

Still unable to return to work with PICC line and a demanding job.

My kp is functioning good now, at 90% considering the abscess is there.

Diet is an issue as always and I am looking into a adding calories once I am off TPN. Benecalorie perhaps to maintain the weight gained.

Hope this helps someone in the future.
BTW the KP was done by Dr Fazio in 2006.
W

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