Hello,
I have been following this site for a while now and find it very helpful and informative.
I was diagnosed with a perianal abscess and fistula in the fall of 2012, which I personally believe may have been caused due to surgeon inexperience when undergoing j pouch surgery (had more than a couple of staples fall out). I had to suggest the possibility of either (abscess/fistula) for the proper scans and eventual diagnoses to take place.
Tried antibiotics with no luck. Eventually requested second opinion from the head of colon and rectal surgery at Johns Hopkins University, Dr. Efron. I have been seeing him since late fall of 2012. I know have a seton drain in place with a temporary loop-ileostomy until j pouch advancement surgery can be done to correct everything.
My question really is pertaining to surgeon experience and outcome. Has anyone ever had Dr. Efron perform pouch advancement surgery on them? If so, what was the outcome?.
I am really contemplating whether or not I should seek the advice of a Cleveland Clinic or Mayo Clinic surgeon before I go ahead and have anything else done. Have had 4 surgeries already and this would be my 5th and counting.
I would like to give this j pouch another shot ideally, but if cannot be fixed, am happy with a permanent ileostomy. Do not want to risk the creation of another pouch.
Would really appreciate input and suggestions!
I have been following this site for a while now and find it very helpful and informative.
I was diagnosed with a perianal abscess and fistula in the fall of 2012, which I personally believe may have been caused due to surgeon inexperience when undergoing j pouch surgery (had more than a couple of staples fall out). I had to suggest the possibility of either (abscess/fistula) for the proper scans and eventual diagnoses to take place.
Tried antibiotics with no luck. Eventually requested second opinion from the head of colon and rectal surgery at Johns Hopkins University, Dr. Efron. I have been seeing him since late fall of 2012. I know have a seton drain in place with a temporary loop-ileostomy until j pouch advancement surgery can be done to correct everything.
My question really is pertaining to surgeon experience and outcome. Has anyone ever had Dr. Efron perform pouch advancement surgery on them? If so, what was the outcome?.
I am really contemplating whether or not I should seek the advice of a Cleveland Clinic or Mayo Clinic surgeon before I go ahead and have anything else done. Have had 4 surgeries already and this would be my 5th and counting.
I would like to give this j pouch another shot ideally, but if cannot be fixed, am happy with a permanent ileostomy. Do not want to risk the creation of another pouch.
Would really appreciate input and suggestions!