Diagnosed with this, does anyone else have this problem with a j-pouch (history of UC and autoimmune ear disease). On creon but still have problem with fat malabsorption when I eat too much fat.
Thanks
Thanks
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Hi Winter Wish,
I'm going through the same process at the moment so we might be able to help each other! I was diagnosed with chronic pancreatitis (aged 12) just 2 years before my UC appeared. i had my pouch operation aged 17 and I'm now 27 and up until now so far so good! No problems with my pancreas since that initial 1st attack, so my GI who i see now thinks it was a missed diagnosis and maybe it was auto immune pancreatitis. She's running tests on me at the moment and my faecal elastase has come back abnormally low, which suggests pancreatic insufficiency. She's repeated the test and I'm awaiting results, but from a bit of research there appears to be a link between IBD and pancreatic insufficiency. There also appears to be a slight flaw in the test that would appear to give false-positive results, in that there is a correlation between the more BM's, watery stools and history of surgery you have, the more likely the elastase will be diluted for the results. Being J-pouchers, those 3 factors must hold more weight for us surely!
You can read the study here:
IBD and PI
Its a medical paper but you can pick the important bits out!
I will let you know how i progress with my GI, how are things panning out your end?
I'm going through the same process at the moment so we might be able to help each other! I was diagnosed with chronic pancreatitis (aged 12) just 2 years before my UC appeared. i had my pouch operation aged 17 and I'm now 27 and up until now so far so good! No problems with my pancreas since that initial 1st attack, so my GI who i see now thinks it was a missed diagnosis and maybe it was auto immune pancreatitis. She's running tests on me at the moment and my faecal elastase has come back abnormally low, which suggests pancreatic insufficiency. She's repeated the test and I'm awaiting results, but from a bit of research there appears to be a link between IBD and pancreatic insufficiency. There also appears to be a slight flaw in the test that would appear to give false-positive results, in that there is a correlation between the more BM's, watery stools and history of surgery you have, the more likely the elastase will be diluted for the results. Being J-pouchers, those 3 factors must hold more weight for us surely!
You can read the study here:
IBD and PI
Its a medical paper but you can pick the important bits out!
I will let you know how i progress with my GI, how are things panning out your end?
Hi there. I see this post is 6 months old or so, but nobody seemed to chime in. I have fat malabsorption and fatty stools all the time. I am also taking creon, but it doesn't seem to help much anymore. Have you found any success in treating this?
hi
I think the biggest thing is to stick to a low fat diet. Have you tried Questran or cholestogel, for bile acid malabsorption ( the terminal ileum is needed for enterohepatic system to work), this may help fat malabsorption. It doesn't work for me (makes the fat malabsorption worse due to the fact that I have too much ileum removed but if less than 100cms removed it should help).
Have you tried a proton pump inhibitor with the creon, as it helps with the acid environment, as too much acid will render the creon useless. Small bowel bacterial overgrowth can make the fat malabsorption worse also, that's where a low carb, low fodmap diet and antibiotics help (if you find the right ones!).
Take care and happy new year
I think the biggest thing is to stick to a low fat diet. Have you tried Questran or cholestogel, for bile acid malabsorption ( the terminal ileum is needed for enterohepatic system to work), this may help fat malabsorption. It doesn't work for me (makes the fat malabsorption worse due to the fact that I have too much ileum removed but if less than 100cms removed it should help).
Have you tried a proton pump inhibitor with the creon, as it helps with the acid environment, as too much acid will render the creon useless. Small bowel bacterial overgrowth can make the fat malabsorption worse also, that's where a low carb, low fodmap diet and antibiotics help (if you find the right ones!).
Take care and happy new year