Hi, I had my take down performed back in Jan 2013. I was doing research on what could or would help with ultimately making this lifestyle a little bit better. Right now I take lomotil and protonix. I still seem to barely get enough nutrients. I have been looking into the possibility of trying out a 2 month cycle of HGH to see how that helps with the digestion. The reason it caught my eye was after my battle with UC failed I looked at new drugs. They use HGH right now for people with short bowel syndrome, which in a sense we do as our small intestine acts as our colon ultimately making it pull 2 jobs. HGH helps the body rapidly absorb nutrients. Also another benefit I saw was adding the mucus layers to the inside and outside of our organs. Which would help with pouchitis, inflammations bouts. It can also help bone growth incase you lost some due to heavy prednisone loss. I know there are some disadvantages but they arent anywhere near as awful as the other stuff they put us on and we suffer through. I was just wondering what everyone's thoughts were on this notion/idea. I am going to ask my new GI doctor at the end of the month..sorry if I rambled I hate posting/typing/texting. (side note HGH doesnt cause organ swelling...its other stuff people take inconjunction with it that cause it)
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What is HGH?
I believe it's human growth hormone.
I don't really know much about it in the treatment of IBD, though, but it sounds interesting, maybe without some of the more negative side effects of biologics.
I don't really know much about it in the treatment of IBD, though, but it sounds interesting, maybe without some of the more negative side effects of biologics.
I'd consider this as part of a well-managed clinical trial. I wouldn't go anywhere near it otherwise, except as a true last resort. The potential for getting it wrong (the dose, the results, the interpretation, the side effects) are huge.
I've taken GH for almost ten years. The only side effect is a decrease in body fat. A very safe hormone.
Thanks for the feedback. I will keep everyone posted...this isnt an instant fix as people believe it takes a month for effects to take hold.
quote:I've taken GH for almost ten years. The only side effect is a decrease in body fat. A very safe hormone.
That's interesting. Did you use the GH before during or after you got your j-pouch? Did you stop using it, if so why?
I started just before my j-pouch. Had a brain tumor next to my pituitary and the radiation treatments put an end to any pit function. In fact I think the radiation may have contributed to my sudden onset of colitis.
Curious if anyone has had anymore experience with growth hormone since these last posts? Thanks.
Sounds interesting...keep us posted on any incoming info please.
Sharon
Sharon