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So after 6 and a half years living with an ileostomy, I've decided to go ahead with my j-pouch creation on this Thursday. Take down to be scheduled 8 weeks afterwards.

Needless to say I am nervous as can be. I was extremely sick with my first surgery (the subtotal colectomy and end ileostomy) and ended up getting sicker after surgery (3 pulmonary embolisms in my lungs).

I am very confident in my surgeon, but I am having a hard time handling the mental impact of this surgery. Pacing, racing thoughts, unable to concentrate, nightmares, etc...

I've had 2 hernia surgeries since the ileostomy, and neither of them effected me like this.

I've read good and bad on this site as to what to expect after takedown, of course I am hoping for the best case scenario, but expecting the worst.

Just wanted to add my 2 cents in and vent my frustration a little.

Thanks,

- Mark

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I had adjusted so well to having an ileostomy that when I finally agreed to having the takedown, one year later, I actually cried on the operating table. My surgeon told me I could still change my mind. That was over 10 years ago and I'm glad I went ahead with the j-pouch surgery. If I had to live with an ileostomy again, I know I could. Meanwhile, having a J-pouch is so much easier to deal with....for me, anyway!
C
Hey guys it sounds like the range of emotions we all go through with this surgery. I know when I had my ileostomy bag after battling colitis for 10 years it was such a relief to not have to experience the urgency and pain of having to go to the bathroom all the time. Personally I had a little OCD problem with mine because even the slightest amount of waste that got in there I was in the bathroom emptying it ha ha. The point I'm trying to make is I'm sure many people understand the ease and relief it was to have the bag after the UC battle that you are unsure whether you wanna go through the struggles of learning a new system and going ton the bathroom like they used to. Yes in the beginning it feels like old Colitis days because the amount of bathroom trips you're taking but not even close to the pain and passing bloody stool every time and having such an urgency that it is impossible to hold. I'm 8 weeks post take down and know from comparing the old days to the new days what a good decision I made. You just have to remember its not going to be easy to get used to and you'll probably freak out here and there not knowing if something feels right but my advise is to have patience and ride this baby till the wheels fall off. After a while you'll learn your body and new system and it will become so routine it won't taken thought anymore. If at anytime you are nervous about something just come on this site. It has helped me through a lot when I would freak out and then realize whatever I was going through was normal because of other jpouchers posts that I've read. Keep your heads up and just picture all the fun things you are going to experience now that you don't have that poisonous colon in you controlling your life.
P

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