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I've taken way too many NSAIDs years ago in my jpouch life, and as a result had problems with pouchitis and cuffitis (which resolved after I quit the NSAIDs and got treatment).

Does anyone know if it becomes safe to take NSAIDs again after the jpouch is gone? I've developed extremely painful arthritis in my toe and undx'd arthritis in my hands which ibuprofen does help, but I can't take it indefinitely. Since I'm already considering pouch removal for other reasons, just wondered if being able to take ibuprofen again might be another benefit.

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Jan DollarJan DollarModerator, RN, retired
Yeah, NSAIDs cause damage throughout the GI tract, not just the pouch. For all you know, it happened to you, but it just was not diagnosed (unless you had camera pill endoscopy to rule it out). The good news is that the damage is reversible and side effects are dose related. Depending on the type of arthritis you have, there may be other treatments out there for you.

But, bottom line, pouch removal would not protect you from NSAID sensitivity.

Jan Smiler
Jan Dollar
n/an/aMember
The foot/toe is osteoarthritis, I am not sure of the hands, probably osteo as well.

Bummer, there's nothing like ibuprofen for these aging-type aches and pains.

I just read of Voltaren topical gel, which contains an NSAID, and "is used to treat joint pain in the hands, wrists, elbows, knees, ankles or feet caused by osteoarthritis." Think I'll check it out with my doc; hopefully, there shouldn't be quite the same absorption and potential GI problems with a topical vs. oral NSAID .... the hope is, anyhow.
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T TannerMember
n/a posted:
The foot/toe is osteoarthritis, I am not sure of the hands, probably osteo as well.

Bummer, there's nothing like ibuprofen for these aging-type aches and pains.

I just read of Voltaren topical gel, which contains an NSAID, and "is used to treat joint pain in the hands, wrists, elbows, knees, ankles or feet caused by osteoarthritis." Think I'll check it out with my doc; hopefully, there shouldn't be quite the same absorption and potential GI problems with a topical vs. oral NSAID .... the hope is, anyhow.

 

T
n/an/aMember

My podiatrist gave me a compounded medication for my foot pain, which I also tried on my hands.  She said it was similar to voltaren and that it worked topically.    My bottle, which is 4 yrs old now, says "anti-inflammatory (Diclof./bacl/bupiv)".  It didn't work, I didn't get it refilled.  The pain is still there, getting worse in my hands.  I did have my pouch disconnected with an end ileo, planning to have the pouch actually removed this year sometime.

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