Clicky, I am SO sorry to hear that you are going through this. I just feel for you so much going through this with an infant. I have 2 small children so I understand completely how hard it is to be going through all of this with kids. As if we don't have enough on our plates.
I had severe refractory cuffitis which was so bad, I did end up developing a RV fistula. I recently when through a pouch advancement with mucosectomy but was first given a loop ileostomy to divert for 3 months to give the area a rest before my surgeon did the advancement. As much as I loathe the ileostomy, it did give me tremendous relief and since I was diverted, the fistula was no longer an issue.
For just the diverting ileostomy, I was in the hospital for 2 days. Would there be any way to pump & dump for the first 24 hours after anesthesia? I would assume there would be some breastfeeding safe pain relievers and your pain should be pretty manageable regardless. Then perhaps be able to have someone bring your baby to you for feedings around the clock? I know this would probably be a huge pain but it sounds like you really need some relief. I hate to think of you missing out on such a precious time with your baby because of the amount of discomfort you are in.
Hang in there. Sorry
