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L
Hi everyone, I went to see my dr. Last week due to my Fistula, and with the test he did up till now suspects that it's a high fistulas. So due to what he suspects, but would be more accurate after other tesetings. He mentioned a technique using the (six pack) LOL! Muscle I chuckled... Because I'm quite thin but haven't seen those muscles for the longest time. He mentioned that it would be a very delicate surgery, that he would need the help of a plastic surgeon,and that it would be a lengthy surgery.Have any of you come across any information on this or link? Because I have had,a hard time coming across anything using this particular muscle. They mention a whole lot of gracilias muscle but besides that one. The only mention of abdominal is going via abdominal opening to be able to reach the fistula. Anyhow I hope this new dr. I've found,decided that he'd take me in as a patient,has been some what of a relief, because like I mentioned in the past,!in Montreal it's not easy switching from one doc to another.Thank goodness for him, he's spoken of so many different treatments that I had no clue of,except for what I've read about on line. He's found me an endocrinologist, Im so grateful,because this dr. Said a little longer I probably would of collapsed, dead.She did some blood work and found my hormones out of wack,especially my cortisol it's to the floor, which explains why I've been so tired and nauseated,foggy brain,dizzy,lathargic,the whole nine yards.I'm still losing my hair and weigh, feel completely drained all the time. She's put me on cortef morning n 2 in afternoon along with multivitamins and vit. D 1/ week thank God.. The old drs. were saying it was normal due to what I went through and I needed to give it time... As depressed as I am and have been, I feel a sense of hope! Sorry for me yapping to long.

I'm so glad I met this group you have all been my pick me up source.. C

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L liz11Member
Yes, my understanding is that the success rate for flap repairs (from any muscle they use) abdominal, gracilis for fistulas is very very low. Now for unhealed chronic wounds... the success rate is significantly higher.

So you really need to get lots of details, ask tons of questions, and make sure that you have docs (both colorectal surgeons and plastic surgeons working together as a team) on it that really are extremely experienced.
L
M MickshellMember
Hi
I've also bee told that I am having that procedure, I have a perineal/vaginal fistula which drains out of my perianal wound that never healed after my proctectomy. I am currently waiting to see a plastic surgeon along with my colorectal surgeon. My surgeon only briefly explained it but said it was a big operation, the only other option for me was to leave things as they are, which after two years dealing with the pain/ discomfort and discharge I'm not prepared to leave things. I have had numerous other procedures in the first 12 months but nothing worked, I also moved house so that has held things up. Not sure how soon my operation will happen , although my husband asked my surgeon and all he would say is once I am on the waiting list it would be no more than 18 weeks.
If you hear or get told anymore about the procedure I would really appreciate anything you learn. As I don't think mine will be anytime soon really unfortunately. The one thing my surgeon did say is the fistula could still come back.
Please keep in touch.
Best wishes
Shelly x
M
L L.DLMember
Hi
I was wondering if you you've gone ahead with the surgery? They spoke to me on the repair but also that I had to have some kind of pacemaker put in, because my sphincter muscle has been damaged due to natural delivery of my daughter and also from my older surgeon trying to repair the fistulas actually made that area worse. So if they wanted to repair to reverse I would probably be completely incontinent . It's called inter slim pacemaker. I'm scared tremendously due to multiple complications from past. But at this poini need to do something.i have a life but the quality of it doesn't make it worth living . Help anyone??
L
D dawn58Member
I had the rectus abdominal surgery in December, 2009. It was a major surgery and I seemed to be doing pretty well, but 5 weeks after the surgery I developed an infection which not only destroyed the muscle, I could have died. Because of the infection, I will most likely need IVF to get pregnant. I think the muscle is way too big to put between someones vagina and jpouch.
D
M MickshellMember
Hi
I am now 12 days post op from perineal/ vaginal fistula repair surgery, my surgeon decided to do a procedure called the 'lotus petal flap' , basically they took some muscle from the inside of my thigh and slid it across to close the deficit, unfortunately post op I got an infection and had to go on iv antibiotics, had a drain for 9 days , I was finally discharged from hospital on Saturday, although I have to continue to take another 5 days of antibiotics. I have a nurse come in daily to pack the wound as although the infection was only in a small part of the wound, it dehisced, so it is an open wound now! It is improving, I have to go back to the hospital on Wednesday to a dressings clinic. I am hoping the will take the staples I have on the inside of my thigh as they are starting to irritate now! I am hopeful that this surgery will be sucsesful as I have had to have many procedures to try an repair this problem over the last 2 and a half years, my colorectal surgeons turned to the plastic surgeons for help ! If anyone is interested there are a few bits of info on the internet and some images on google! It doesn't look nice and is very tender, but if I get the right result then it will be worth it ! I got my fistula's and accompanying abscesses after having my j pouch removed. Good luck to you all.
Love Shelly xx
M
L L.DLMember
I'm so sorry to hear of the complications you are having due to infection. I'm not sure I understood right but I read that you had your pouch removed? Later had the lotus flap repair? Did they remove your pouch due to the fistulas causing to many problems? I'm so sorry my heart aches for you. It's so awful this illness is so complexed it touches so many aspects and so difficult for people around us to understand. I am still waiting to see what they will do for me because after my MRI that states there is a vaginal pouch fistulas? And my surgeon says he doesn't think so. I am going out of my mind because living with an end ileostomy and still running to the bathroom because of constant leakage. Sorry Shelly I ranted there for a minute.. I truly hope they can help you, so you can get some peace in your life. All the best to you.
Lucy
L

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