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My daughter had an upper GI with barium on Weds and the GI and 'crohns specialist" radiologist think that the pain she has been having for the past month is coming from an area where she had her strictureplasty (for a full blockage) in Jan. The abdominal pain started about 7 weeks post op from that surgery. At first the GI said it was her bowels settling in after surgery but now they see a little odd looking spot where they think the surgery site was. The surgeon out where she is at college (not her surgeon) is not sure the pain is coming from there and would like to "explore" and see if he can find anything else and also said he could go in and do a resection there but it may not stop her pain because that might not be the problem. Oh, and she can just be in pain, some people who have had surgery (she has had 4 now) just have chronic pain.

Her GI and radiologist say she doesn't have crohns and he does not want her on biologics unless he sees a reason for it. He wants her to have a double balloon enterscopy next to visually see the area showing up on the upper gi test and see if there is crohns there or not and if a resection of the area is warranted.

We don't care what it is called, UC or crohns, my daughter is in pain.

Thank you.

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Hi Becky's Mom,
So sorry that you and Becky are still on this merry-go-round...it is time to get off!
I am dead against throwing drugs at something that may or may not be there because at best you don't know what you are doing and at worst you are not helping...get the entroscopy done to see further into the problem and find out the source of the pain...We rarely have pain for nothing in my experience...There is usually something there waiting to be found and fixed...I just feel so bad that this is still going on and on...
She needs good visualisation of the zone and a clear diagnosis if possible...not a guess and wait and see...
Hope that the next test gives her some concrete results and relief...
Hang in there, you are one great mom
Sharon
skn69
Surgeons cut and GIs ave a medical focus, so it is not too uncommon for there to be conflicting opinions on how best to proceed.

For me, I like to use non-invasive methods for diagnosis before resorting to surgical exploration. So, the GI's approach appeals to me. Sure, it could come up as a dead end, but I'd go for that before more surgery. I also agree that biologics without a reasonable indication of an appropriate diagnosis doesn't make sense, especially since they could take up to 3 months to be effective.

She may require the surgery in the end, even if this is Crohn's, but one step at a time...

Jan Smiler
Jan Dollar

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