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L
I'm wearing aa ileostomy that's completely detached from pouch and more the time passes the worse it's getting,at first it was a little bit of discharge once a day now it's constant leakage all day long and espessialy at night time what's worrying me is that I feel the urgency and head for a bathroom which don't always get to on time.its frustrating to have the ileostomy n still have to run for a bathroom and and end up with an accident.. To top it off they seem to be getting on the yellow/green side with a foul odor. Has anyone had this????? I'm so frustrated because of my delemma of being I between 2 different hospitals it's been hard trying to get through to this new secretary of the new Dr.Faria who wants to take me over as new patient. I tried calling her this week and she gives me the brush down by saying { well you know that you have a fistula so were waiting for you to be seen by the gyno dept.} I keep on asking her what the gyno have to do with it??? She replies with that's what the dr asked for. Again with the change of dr issue here it puts me behind. Anyhow it's driving me crazy due to the recto/vaginal fistulas I'm irritated from front to back. God knows what this means? Does it put the pouch at risk? This will surely delay the rectal vaginal repair, especially if the gyno has to get involved. It's been 5 weeks since I was told that the gyno would call me for an appointment. They call us patients, but I'm starting to lack it more n more...so if anyone of you has had anything familiar to this I would appreciate your input.

LDL

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J jeaneMember
LDL,

I am sorry for your suffering. This is unacceptable considering your situation. I would try again to reach the gyno and bring this to your colorectal surgeon's attention as well and would suggest you have HIM/HER contact the gyno on your behalf. If you get no response, I would let either/both office(s) know you are going to file a complaint. This is really your surgeon's responsibility to coordinate your care with the gyno since both need to be involved for the repair. I would not allow anyone to further operate on me unless they are both in attendance together.

When I had my temporary ostomy I had a lot of drainage (mucous also). I used to have nighttime accidents often (just fluid leakage), but no daytime issues. At that time my surgeon put me on augmentin and they felt I had what is called diversionary pouchitis. I have been on and off antibiotics pretty consistently over the last two years due to this issue, but things are improving for me. My issues are different than yours (I have a stricture at the anastomosis site).

The yellow/green fluid and odor is suspicious to me for infection. Warm baths will help with the pain and try and keep your vaginal and anal area as clean as possible considering your situation. i would think at the very least they may want to prescribe you and antibiotic if you have an infection and also due to the fistula. I do not think you want to delay on this issue so I would definitely be making more noise to your doctors.

Hope you get some relief soon.
J
L L.DLMember
Hey jeane ,sorry for not replying any sooner, I have no clue if you read my story but when it rains it pours. To get back to the problem I finally pushed my way thought this new secretary,she thought the mucus was coming via ileostomy,and couldn't understand that we can still loose adequate amounts of leakage analy. So I to am suffering from diversion pouchitiis he put me on the usual cipro flagyle antibiotics plus salofalk enemas the problem is holing them ini put it analy and it comes out through vaginally due to rectal vaginal fistulas. Besides that w this new dr hear and seen what the other hospital had put me through the 6 months I was there the back to back surgeries n errors with the cotizone he coulda not understand that thy let me go with out ever being followed by an endocrinologist and so referred one . God bless this dr. She could for the life of it understand that today in 2013 doctors or a hospital would put a patient on high doses of cotizone make errors in administrating double dosesAnd when it comes to time to be released from hospital they let them go when them within a couple of weeks and then that's it no one follows u so ontop of everything my cortisol is to the floor. It explains why I be been feeling so lathargic ,completely exhausted with no energy what so ever I thought I was just going through a major burn out but results show that it's due to theLow cortisol in me . I'm just hoping for a break a little break maybe that's asking foes to much
L
L L.DLMember
Hey Njk your absolutely right and mine has been none as rectal vaginal fistulas high up . They now need to pin point it exactly where because of the different options that are available. The way the dr. Explained to me is that they will need some type of muscle that may have to be from the six pack abs lol!! Mine have been decorated with thick scares and stomas so we really didn't get into detail. The only thing was that it required lots of work and was quite complicated.... So for no we worry about the diverting pouchitiis n figuring out where exactly and hopefully that it's at a place where it's do able without the pouch beaning compromised. I've had the ileostomy for a few times and if I can be stoma free, without to many complications I'm gonna way the option.I've had my share of bad lucks and more this is my last straw........


Thank you to all I wish I found this place a couple of years sooner!!! You are all great I take my hat off for you all
L

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