I was wondering if anyone here has familial adenomatous polyposis. I was diagnosed with it in 1997 and have since had two J-Pouches created. Now with all the test I have to undergo, my veins are ruined. I am having a port put in this coming Wednesday. My Mother and brother both had it but have passed away. I do not know another soul that has it. I am in the lower percent that have the spots on my retinas and have had both the major and minor ampulla varta removed because of the polyps growing on them. I have had many polyps removed from my duodenum. Now it seems I have something growing inside my liver, hence my oncologist urging of ther port. I am just wondering how others are coping with this hateful disease.
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