I am wondering what symptoms people have after having J-Pouch surgery for UC that lead to a Crohn's diagnosis? I have had my J-pouch since 2006 with very little problems. Recently I have starting feeling bad, a lot! I stay exhausted, sleep any time I am not working. No bleeding but trips to the bathroom, urgency and night time leaks seem to have increased. I have a dull pain/burning feeling in my abdominal area, a loss of appetite on some days. Joint pain, some days my ankles hurt so bad it is hard to stand. I'm unsure if any of this is realated to my IBD or not. Any thoughts????
Replies sorted oldest to newest
There are other possibilities to consider before Crohn's. Have you been evaluated for pouchitis? I feel pretty crummy when pouchitis flares up.
I was thinking the same thing as Scott F, it sounds like pouchitis and should be evaluated.
Thanks! No, I haven't been evaluated. I haven't had any big issues with my pouch in the past. I have night time leakage from time to time and once in awhile I get butt burn. I've never had pouchitis, to my knowledge so I'm not familiar with the symptoms. This is the first time I have had pain and I just feel so bad all over. I guess it is time to make a call to my doctor.
Sounds like pouchitis to me.