Hi NJK,

I have four fistulas with setons. What type of questions do you have? I would PM you but I actually don't know how to do that (despite being active on this site for years), but I can respond if you PM me.

It can be a daunting process and isn't fun. But please ask me anything you want, no matter how graphic, because I wish I had known more about them before it happened to me.

~Tammy

I had a few pop up right after my initial surgeries. They could not be repaired directly because the tissue wasn't healthy enough and an advancement flap procedure as well as mesh also failed. They were always better during anti-biotics because the output was too thick to get through...not gone though. I eventually had a gracilis muscle graft to repair them. Fine to deal with when they are small but mine "burst" and there was essentially little separating my vagina and rectum. It can be very frustrating and little works to fix them if they are related to your bowel disease. A surgeon or GI will always treat as conservatively as possible so they have to get pretty bad before they will agree to do a muscle graft repair.